@jj947372 hi, for 31 years I suffered with what I thought was a bad back, it was not until they diagnosed the tumour and had the operation that i got any pain relief. Now it is as if I am back to being 16 and am able to do things I have not for years, the best thing is sneezing they are so good when not linked with pain so I think she will be no problem and she should take up everything she did before the operation.
@jj947372 she has not had any of her nerves damaged or restricted so her recovery will be a lot easier. please let me know how you go on, If you need any more information than please ask
@jj947372 hi I hope you get a diagnosis soon so you know what to expect. I think the reason your daughter is not worried is because she has been through the restrictions of the broken back. the only way I can describe how you feel after the operation is when you have been to the gym and done far too much for your fitness level so you wake up the next day feeling like a plank of wood and you are restricted to the movements you can do. I think because she did not have any symptoms that means that
Thanks, my daughter is 17, about to be 18. She broke her back cheerleading in 2009, and a couple weeks ago went to have her final visit and they found the lesion. They dont know what it is yet and so we wait. It is 1.1 cm tall and .7 cm wide. I think it will end up the ependymoma type, They are looking to see if it is possibly an expression of neuro fibromatosis. She has never had a single symptom.
@jj947372 hi I am in Barnsley Yorkshire England, if you have seen the film Kez that was filmed where I live! The tumour was a conus ependymoma according to the follow up letter from the hospital. I think the doctors forget that this is a new thing to us but the usual proceedure for them. I think because it is rare there is no one to talk to about it, I have not met anyone here who has had this opperation so it is nice to talk to you. How old is your daughter?
Are you in England? We live in Birmingham, ALabama, USA, and we have some really great surgeons here. I dont think my daugher is that worried about it, its her mother and I who are worried. We just dont know what to expect, actually we are still waiting on a bonafide diagnosos. We are in complete limbo. Do you know what the actual type of tumor was that you had removed?
@jj947372 Hi the surgery was done at the Royal Hallamshire in England by Dr Battacharyya, a brilliant man who said the operation would take 6 hours but actually took him 11.5 he sttuck in there and removed 99% of it.
@jj947372 hi, for 31 years I suffered with what I thought was a bad back, it was not until they diagnosed the tumour and had the operation that i got any pain relief. Now it is as if I am back to being 16 and am able to do things I have not for years, the best thing is sneezing they are so good when not linked with pain so I think she will be no problem and she should take up everything she did before the operation.
Th3Gr33k 11 months ago
Are you back strong and able to do all that you have ever done? SHe wants to runb and just be
jj947372 11 months ago
Will do thanks
jj947372 11 months ago
@jj947372 she has not had any of her nerves damaged or restricted so her recovery will be a lot easier. please let me know how you go on, If you need any more information than please ask
Th3Gr33k 11 months ago
@jj947372 hi I hope you get a diagnosis soon so you know what to expect. I think the reason your daughter is not worried is because she has been through the restrictions of the broken back. the only way I can describe how you feel after the operation is when you have been to the gym and done far too much for your fitness level so you wake up the next day feeling like a plank of wood and you are restricted to the movements you can do. I think because she did not have any symptoms that means that
Th3Gr33k 11 months ago
Thanks, my daughter is 17, about to be 18. She broke her back cheerleading in 2009, and a couple weeks ago went to have her final visit and they found the lesion. They dont know what it is yet and so we wait. It is 1.1 cm tall and .7 cm wide. I think it will end up the ependymoma type, They are looking to see if it is possibly an expression of neuro fibromatosis. She has never had a single symptom.
jj947372 1 year ago
@jj947372 hi I am in Barnsley Yorkshire England, if you have seen the film Kez that was filmed where I live! The tumour was a conus ependymoma according to the follow up letter from the hospital. I think the doctors forget that this is a new thing to us but the usual proceedure for them. I think because it is rare there is no one to talk to about it, I have not met anyone here who has had this opperation so it is nice to talk to you. How old is your daughter?
Th3Gr33k 1 year ago
Are you in England? We live in Birmingham, ALabama, USA, and we have some really great surgeons here. I dont think my daugher is that worried about it, its her mother and I who are worried. We just dont know what to expect, actually we are still waiting on a bonafide diagnosos. We are in complete limbo. Do you know what the actual type of tumor was that you had removed?
jj947372 1 year ago
@jj947372 Hi I am not that good with the computer so if you want to continue on here that is good for me. Thanks Sue
Th3Gr33k 1 year ago
@jj947372 Hi the surgery was done at the Royal Hallamshire in England by Dr Battacharyya, a brilliant man who said the operation would take 6 hours but actually took him 11.5 he sttuck in there and removed 99% of it.
Th3Gr33k 1 year ago