Cholesteatoma
Uploader Comments (captaindefinder)
All Comments (35)
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@bebss07 i unfortunately am not so lucky i have borderline severe hearing loss in my right ear due to the cholesteatoma. i had my thrird surgery back in December and my doctor said he would try to restore some hearing if it was safe but it turns out it wasn't, if he had tried it would have gotten to close to my facial nerves leaving me paralyzed on my right side of my face :/
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Lol, I just got this surgery yesterday, im feeling much better.
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Haertly thanks to dr.mohit agarwall &entire team at kokilaben dhirubhai ambani hosptal,mumbai (india)
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i had my operation 4 days ago, i rly hope i dont need the second one, my hearing is still the same, but i hope it will get better after the recovery and the removal of the tampon =), had this shit 20 years =S , didnt know why i learned about that 1 month ago ...
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I have cholesteatoma, I just got my surgery done yesterday~
Oh my god, Pray for me<3
I feel like giving up~ This is too much D:
But I believe in my doctor, he is simply amazing! He already knows how to regain my hearing that was lost from my right ear<3
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@bebss07 sorry to drag on but I think this may be useful :L
I'm taking ear drops for a couple of weeks now just to rid of any wax of goo left behind from the operation and packing. I don't know yet if my hearing has improved because it was only 3 weeks ago but i have a hearing test in 6 weeks where hopefully it will've improved:) thing is though, it isn't life-threatening which means you may have to pay. Mine was free cos I live in England but I don't know about the US though. Hope this helps:)
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Even if your hearing is damaged by the cholesteatoma it can be improved later on. I've had 3 operations to remove my chronic ear disease and cholesteatoma which (fingers crossed!) is now all gone and I am hopefully disease free. However because of the disease I had 50% hearing loss in my left ear. I an operation again 3 weeks ago to repair my hearing by connecting a piece of cartilidge to the ear drum and linking it to my 3rd ear bone (other 2 previously removed due to contamination)
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I just had my surgery, and it sucks having your ear stuffed with the packing. I moved around a lot and had this thing in my ear for 6 years until just now! Do not make the same mistake as me! Get it taken care of asap! I have no hearing in my right ear now. The anesesia doctor was amazing though. I didn't even get sick! Hardly any pain at all. The laser incision was really cool and should keep scaring to a minimal. No staples! Dr. Berryhill in Norman, OK did an amazing job.
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it will be my 6th ear surgery for clestiatoma. they cut the back of my ear to get in so it was painful. the worst part was the anestesia aftershock. it just makes you want to throw up.
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After CT scan, my doctor told me I have cholesteatoma on both ears. Can you please tell me how's your hearing recoverd after surgery. My hearing is weak but not totally deaf. I read some posts that the first month will completely deaf after surgery. Do you feel any more ear pressure or pain? I am scheduled my surgery at Sunnybrook, Toronto. OMG, I'm so nervous my hearing may totally lost after surgery. Thanks
Please tell me how bad the scars are after :( ?
lookintothesky123 1 year ago
@lookintothesky123 my scar is very thin and not visible to the public at all - I do have an indention behind my ear that feels like a small crater.
captaindefinder 1 year ago
dud video
zoeblome 1 year ago
@zoeblome So sorry - you must have never suffered from a cholesteatoma. Would love to view your great video.
captaindefinder 1 year ago
hey captaindefinder can you please tell me i'm going to have an cholesteatom surgery and I was wondering when he cut those thing in the ear just to reach cholesteatom does that hurts after surgery and my docktor said that cholesteatom in my ear is small so I guess that is a good thing and is it normal for my ear to bleed like that and will I lost my hearing please tell me! thanks
3torock2tosock 2 years ago
I was very scared to have surgery - it was not nearly as bad as I anticipated - I never had to take a pain pill because I never suffered any pain. The doc drilled into my mastoid to get to the cholesteatoma wasn't painful. A lot of people with cholesteatomas get the bleeding ear - I never had that - my cholesteatoma was discovered six months after having bell's palsy (which was caused from the cholesteatoma). I am much much better now. Good luck with surgery - do you have a surgery date?
captaindefinder 2 years ago