Transposition of the Great Arteries - Luke's Journey

Our son Luke was born with Transposition of the Great Arteries and a Ventricular Septal Defect. He had open heart surgery when he was 5 days old. This is a video showing our journey from birth to four months. He is doing great!!

Category:

People & Blogs

Tags:

• Transposition
• of
• the
• Great
• Arteries
• pediatric
• cardiology
• TGA
• Congenital
• Heart
• Disease
• CHD
• VSD
• Ventricular
• Septal
• Defect

[mannurse714]

My son was born yesterday, he has TGA. We are so scared for him. He will have surgery to correct this defect probably at the end of the week. If you have any suggestions for websites or resources to learn more about the surgery I would appreciate it.

Thank you for posting this video it gives us hope and encouragement. God bless you and little Luke.

[austinwengirl]

@mannurse714 We are thinking about you and praying for you little guys successful surgery and speedy recovery.

[austinwengirl]

Luke is doing great! Looking at him now it's hard to believe he went through all of this!

[smstan66]

You are so lucky to be able to bring your baby home! My son never had the chance. He was born prematurely at 32 weeks and had heart suregery a few days later! He also had a hole in the heart and PDA. The surgions hands were like spades and our sons heart was the size of a wallnut! He is a very special man. Our son Alfie lived for 51 days but died from an infection (endocarditis). Unfortunately, Alfie was not one of the lucky ones and lives on in our hearts. God bless you and your family.

[austinwengirl]

I'm very sorry for your loss. Alfie was lucky to have parents who love him so much. Our thoughts and prayers are with Alfie and your family.

[nikos24productions]

i'm 20 now going to 21 on april. though i am having a problem with fatigability i can say that i am blessed to have reached this age. i have been born with tga ,vsd same as luke and i had a senning atrial (not the arterial switch).

through here i want to learn and share stories with anyone who share the same procedure that i had. bless you luke, bless us all with this kind of heart.

[MrsBryant2009]

God Bless you and your Little Angel. I just went through teh same thing with my daughter, She just turned 15 months old and she had a complete repairment for VSD and Tetrology of fallot at 5 mnths odl weighing only 9 pounds at the time, it was by far teh hardest thing i have ever been through, i thankgod everyday for helping us get through it and lthank him for my angel being healthyand alright, shes a normal child. God is Great, With god all things are possible. .

[3226919]

Our baby was born last Dec. 17, 2011, after 1 day they find out that he has TGA. We transferred him from Sitka, Alaska to Seattle, Washington. Surgery is the only way and we had no other choice but to give it a shot. And now the surgery is done, were just waiting for him to be fully awake so that they can put out the tubes so he can do breathe on his own. We've seen your struggle and hoping more that our baby would grow as other normal child is. Thank's for posting you own experience.

[theguyinthefunnyhat]

Hi. I love this story. I had the same when I was little, infact, when I had practically just been born. I had TGA and it was corrected with an arterial switch. I'm now 16, I wasn't supposed to live even up to 15. During 1 night, My heart stopped 7 times, the doctors said to my mum that if the breathing machine stops, they will turn it off and let me go. I LIVED!!! I'm happy to share my story, this story touched me and made me realise how special I am. LLL (long Live Luke) <3 Thank you.

[JCASHrip]

I must say that going to pediatric hospitals with professionals specialized in congenital heart defects makes a big difference. When I was on rotations at Cardinal Glennon Children's Hospital, those physicians constantly checked on their wee little babies with TGA, Tetralogy of Fallot, VSD, etc. It just goes to show to research the hospital you go to before you put your baby's life in someone else's hands. Pediatrics is the best!

[Smokybarrel]

My done had his surgery on 8 aug 2010 and is as of now 15 months old. He had TGA with VSD and ASD. He pulled through the surgery like a champ and is all over the place now! I know how y'all felt during all that too. It tour me up inside so bad when I first heard the news and even more watching home go though all that. But still I thank god every day for my son and I just don't know what I would ever do without him now!!

[bellezasecrets]

thank you for sharing this video, we just found out that my sister's baby has TGA and although we are concerned, we are firm believers that he will be fine.

[cdhayman100]

My daughter was born in l971 with TGA. She has just turned 40. She is married with 2 children , she is a teacher and is and well and happy. She did not have the more up to date procedure, but has had no problems so far. She has had excellent care. Surgery at Montefiore for the Mustard Procedure in 1972 and a correction in l973. She takes good care of herself which is important.

[NewBoiiTV]

My name is Tony Stewart Jr. In 1991 I underwent TGA. Ill b 20 in september..God bless!!!!!!!!!!! please add me

[KidsRtheWorld]

my husband was born with TGA hes had all the surgical procedures he is now 33 yrs old and doing good we have had some problems with shortness of breath and with the pacemaker as he is stubborn and wants it under the muscle where its protected more...im glad everything went good for ur son may god be with him and protect him always :)

[JessMsLovely]

@nikos24productions i had the same operation. im almost 23 now. im glad to hear about someone the same age as me doing good with the same operation.