Living With and Managing Sickle Cell Disease

This video—presented by the National Heart, Lung, and Blood Institute, part of the National Institutes of Health—shows how Tiffany, a mother and student, has coped with having sickle cell disease. Born with the most severe form of sickle cell disease, sickle cell anemia, Tiffany has lived with the symptoms and complications of this disease her entire life. After giving birth to her daughter, Tiffany became very sick and was admitted to the hospital many times. In 2009, she began treatment with a medicine called hydroxyurea. Although Tiffany's brother had taken hydroxyurea and had many side effects, Tiffany has had success with the treatment. Her commitment to following her treatment plan and living a healthy lifestyle have helped her manage sickle cell anemia and live a happy, full life.

You can also view this video at http://www.nhlbi.nih.gov/health/dci/videos/sca/video_sca.html

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[amran607]

Thank u I know how u feel also I have the disease to I'm 15 and been sick many

Times from school the last time I

Got sick was last year I was outside to long waiting and That afternoon I couldn't walk so I went to hospital so thank u for telling me I

Can do whatever I am I NOT going let it take over me

[PreciousMe03]

I KNOW YOUR PAIN. I HAVE THE DISEASE. I JUST GOT OUT THE HOSPITAL, WHEN I GET SICK IT BE REAL BAD. I BE IN SO MUCH PAIN. I BE FEELING LIKE DON'T NOBODY CARE CAUSE THEY DON'T UNDERSTAND MY PAIN. ONLY MY BROTHER UNDERSTANDS BECAUSE HE HAS IT. BUT I'M REALLY GLAD I WATCH THIS VIDEO. NOW I KNOW IT'S MORE PEOPLE THAT UNDERSTANDS THE PAIN I BE IN.

[pallenjones]

Awareness...great job.