Symptoms I experience with Endometriosis

This is a little video about what kind of symptoms I feel from endometriosis and how they affect my body. Every woman is different in the symptoms she experiences. These are mine.

Category:

People & Blogs

Tags:

• Endo
• endometriosis symptoms
• pelvic pain
• chronic pain

[outforbl00d]

I'm glad you posted this. Endo kind of runs in the family, and I've had such intense pain during menstruation since I started at 9, up my back, down my legs, on rare occasions into my calf muscles. Over the last few years, it's gotten worse and I've been getting terrible back/lower spine pain that occurs out of no where, but usually around my period. Usually a stabbing pain in my lower spine that lasts about 15 minutes, and it sends a throbbing pain around my abdomen :( Do you ever get this?

[penguinvsminja]

@outforbl00d My back pain hasn't been as bad as my leg pain in the last year or so. My leg pain seems to be getting worse and worse every month. I do know, however, a lot of my pain is coming from IC and PFD as well, so its become very hard for me to find a combined treatment to try and treat pain :( blahhhhh haha

[kataliceb]

hi thanks for video, have you found that the pill helps? or the de pro injection? i have similar to you and had surgery it went away for a bit but now his worse than ever and all my doctor has said is stay on the pill or injection, take pain killers before sex, and go on a mild antidepressant to help with the pain and anxiety,

they must be more i can do? i want to try alternative things but it's so hard when your in pain and down a lot because of it. i really can't except it yet.

[penguinvsminja]

@kataliceb sometimes i do feel the birth control i am on holds the symptoms at bay to a certain degree, but not all the time, and not during my period. birth control does not stop the disease from existing, it just changes your hormones enough to try and stop the tissue from reacting to those hormones as drastically. i can't really take pain pills, they make me so nauseas.

[daydreambeliever28]

I experience the exact same symptoms, I had surgery in October 2010 and the endo was found to be much more extensive than originally thought so I encourage all of you who are on the fence about having the surgery, to do so. Yes the surgery does hurt a lot. It took me between 6-10 weeks to recover but I also had some complications with my surgery so it's probably less for a totally successful operation. I had a lot of damage to one of my kidneys which was very painful and still causes some pain.

[penguinvsminja]

@daydreambeliever28 i wish you all the luck in the world with your journey with this horrible disease. let me know if there is ever anything you need or even if you just need to talk :)

[elliacolley]

@outforbl00d Have you seen a Dr? As she said, the pain manifests in very different ways. It took them 5 years from my first hospital admission to diagnose my pain because my pain was manifesting in different ways. I have constant abdominal and pelvic pain that radiates into my chest, shoulders, neck and head. On my bad days I am in so much pain that I am not lucid because the pain is so intense it completely shuts me down. I vomit, I pass out, and I don't get out of bed for a week after.

[MeagsL]

I'm having very similar symptoms to you. I just met with my doctor today and we decided to do a diagnostic laparoscopy. Have you had this done? I'm a little bit nervous for it, but I'm anxious to know exactly how bad my endo is and find out if they can treat it. Also, how do you stay so positive?! I try to be a positive person but being in pain all the time really wears me down.

[lucyinatree]

@daydreambeliever28 the surgery really hurts? Oh no! I am very likely to have to have surgery. I thought it was a day thing in and out in one day. Is that not right? I have to have a laporoscopy sometime in the next few months. I was hoping to work towards a half marthon. I am worried to sign up for it incase my treatment is going to be extensive. Its horrible so life consuming. Did you have a scan first to discover it or how did it go? Sorry heaps of questions! How you doing now?

[MIssy86ify]

Thank you so much for posting this! it makes me feel better that others understand that this is a disease and does affect us.

[MsDoors33]

@penguinvsminja I'm starting to see that. Some woman don't get a period some women get a period every 35 days. My case is just weird. Good new tho, I have no children and I have not ovulated since my surgery I did this month because I have been charting WISH ME LUCK!