My Life with Chronic Fatigue Syndrome

Hello, so this video explains the illness I have called Chronic Fatuge Syndrome, which alot of people don't know about me. Hope this helps you in any and everyway :)

Category:

Education

Tags:

• Chronic Fatigue Syndrome
• CFS
• ME
• struggle
• help
• acting
• writing
• films
• love
• family

[Samsmilify]

thank you so so so much for posting this, what you described is how i feel every day and its so hard because people don't know what its like, I'm in year 12 (the last year of high school in australia) and I've had chronic fatigue for 3 years now and its still such a struggle. do you have any tips on how you cope with it because i was getting better but then i just had a huge down. I've also been diagnosed with depression. I'm just so glad you made this video so i know I'm not alone.

[Enchantelover247]

@Samsmilify Hello there! WOW I'm glad this helped and you like it hehe :) I'm very sorry that you have had it for 3 years!! And that you've been diagnosed with depression ;( How I cope with it is proberly a mixture of things, I try to ignore it (I don't mean like forget about it and do myself harm) I just mean, to think of it as not a big deal (well pretend it isn't anyway) I sort of think "Okay, so my body is hurting- it's suppose to" And I'd laugh about it, I'll inbox cause can't write much :)

[Enchantelover247]

@selena324 Yeah, I know what you mean!! Today there's this man coming to talk to me about home tuition - I hope I'll be getting it soon :) And thank you SO much - support means alot hehe :)

[selena324]

@Enchantelover247 It sux when no one wants to listen, they make ya feel like your crazy (at least thats how they make me feel). I'm here if you ever need to talk, feel free to inbox me I'm also on facebook

[Enchantelover247]

@selena324 oh I see :( I'm sorry, I have a teacher at my school who is my head of year, and she is in charge of me - she don't believe me either, and the other week I went to the doctors cause I was really really concerned of my lungs, my breathing and my heart- and he didn't really believe me, so he just said I was fine, but when you know there's something wrong and a doctor tells you there isn't - it really annoys you!! You think, what do you do now- one thing for sure, it's scary having this!

[selena324]

@Enchantelover247 Its hard for me because my husband is a paramedic and works with a lot of dr's who believe the CFS is a "blanket term" and don't really believe in it. My husband see's how I struggle, but in the beginning I felt as if he didn't believe me. Some dr's made me feel like it was all in my head or I was going crazy until I found a dr who diagnosed me. Some people don't understand when they don't see anything physical.

[Enchantelover247]

@selena324 :) aw thank you for saying.. thank you!! hehe :) Yeah it is difficult, and it's even more difficult when you don't have the support. So you say no one understands, do you want to expand on that? I really want you to have help and support, because we deserve to :) All the best, God belss xxxx

[selena324]

@enchantedlover247 thank you for posting this, it's so difficult and no one around me understands.

[Enchantelover247]

@Bettylalunaful aw I'm SO sorry <3 But all we can do is carry on, cause that's the only way we can get better :) I wish you the best of luck, and I have subscribed to you; lots and lots of love, Katie ~<3

[Bettylalunaful]

ps...but I am still disabled by it, and limited in many ways, and very weak and I'm sure you know the drill...hugs!