Multiple Sclerosis Tysabri #5 update vlog part 1

I am on my fifth Tysabri infusion and all is going well! I also have a new love in my life and pose the question asked to me 'Do you think of MS all the time?'
I talk so much, that there is a part 2!

Category:

People & Blogs

Tags:

• MS
• multiple sclerosis
• tysabri
• awkward bitch
• marlo donato
• rebif
• interferons
• ms treatment

[Finer8]

When do I need to call my doc, I am still able to function, I keep telling myself that this is all psychosomatic and that's why i am constantly thinking about this...Glad to know there are people out there that get it. Any tips?

[teslagirlM]

I would say it is time to call your dr now. I do this too. I wait and wait, because even after five and a half years, I STILL don't always link my problems together! It could be a relapse, or a flare up, but the doctor should determine it. Also note that in the first year, many people get a higher amount of relapses. That was my cae, so don't put off calling the dr because you dont want to hear him/her say you are in a relapse! You can take steroids and speed recovery! Especially if u R in pain.

[jesterspace]

I think of my MS when I'm alone. Why I try to surround myself with people.

[teslagirlM]

Thanks for your honesty, as always. I think many people will feel the same way.

Good luck with Tysabri. I wish you much good health on it!

[annasigridur]

I really liked your comment which relates to the question is it MS or is it PMS... I can relate, i have probably had Ms for 10 years but only known about it since april last year

[trosper]

I just had my first Tysabri infusion yesyerday. It went really well. I dont think iI had any side effects.

[itsjustmandy]

i think about my MS daily. when i was first diagnosed 4 months ago, i thought about nothing else. the thought was constant and overbearing, because the symptoms were constant and overbearing. now that i'm out of that relapse and learning my "normal", it's not a constant in my mind, but still a daily thought. a tingly hand, a jello leg, blurry vision... there's something every day.

[Finer8]

Thanks for posting this. I was diagnosed in April and just yesterday was driving and thought to myself, "crap, am I going to have to think about this everyday?" Granted my right arm is numb, heavy, and cold. I have been getting pain in my eyeball and face, and so tired (is this a relapse). I am a novice at this and don't know any better.

[eyewall41]

I believe you wouldn't be with this new boyfriend if you truly wanted to be alone. You deserve love and you are right about not being able to turn it down. I wish you guys all the best and he is a lucky man :).

[angelusa73]

Dear Margot,

It's hard to live without thinking about MS but going home back to Italy allowed me to let go of the disease and I was able to LIVE in the real sense of the word.

Being back home, to a place where I didn't have MS allowed me to go back to the time when I was still healthy and every single time I go back to Italy, I get to feel so good that I realize that my type of cure is not just a medicine. It is also in my mind.

I stopped thinking about MS and I started living again.

Hugs

[egil4427]

I try not to think, its hard, reminder follow every step I take so I just sitting and surfing internet ocean. Listen music, reading jokes. I want lost myself.

Why I see big question marks in your eyes, Can I, Should I

Life too short.

No one knows what happens tomorrow.

Waiting vlog part 2.

[catimini34]

to find (no to gind ?! :()