Important Ehlers Danlos Syndrome stories I wanted to share

I wanted to share some important stories of people who have watched my, and other peoples vids on you tube regarding EDS, that have messaged me telling me of the difference it made in their lives. I also wanted to share the reason why I decided to start advocating and sharing my life and my disability with the world. I thank all of you for your continued support and for all of you who are advocating and sharing your own stories with the world, we ARE making a difference!! ( I want to say a special Thank You to a few of you (you know who you are ;) for your support, love, and kindness that has helped me continue to remain strong and continue to fight day after day....I love you all!)

Category:

People & Blogs

Tags:

• Ehlers Danlos Syndrome
• Collagen Disorder
• Connective Tissue Disorder

[stilesmarsha]

you are beautiful! My son actually said, "I don't know why God made me this way, but I am sure that he had a reason....maybe I can help other people who have a disability realize that God made us and we are special because of our disabilities" You like my son are an inspiration!

[rockerchik76]

Your son is amazingly strong and so very right! this comment made me smile along with some tears:) God has many special plans for your son and please tell him that I think he is the bravest and strongest person I know, plus a hug from me lol!! God does use certain people with disabilities to help others going through a very difficult time and use us as an inspiration! What is so amazing is that he realizes this at such a young age and he has one amazing mother as well!

[tiredmommyspinning]

I've been watching a lot of videos on EDS my mom is going to be taking the test soon to see if she has EDS. All our lives my mom and brother and I have always talked about our backwards knees as we call them. We all half extremely flexible joints. My brother can twist his arm all the way around so it looks like t is broken. I can not even tell you how many times I have fallen because my ankle or knee or hip popped out of place. I am excited to hear my moms diagnosis.

[Zorlac0666]

@danthehempsmog I'd say you do. You seem to be the only one that knows anything about it, yet you've said some might nasty things recently on her videos. You seem to be making things up for attention.

[danthehempsmog]

@Zorlac0666 I need not proof, I lived it with her...I heard her sad, vivid details. I sat with her crying in dismay and wondering why,,,WHY. I suffered too you know.

[Zorlac0666]

@danthehempsmog When was this, and what proof do you have of it? Also if it's true who are you even to be saying some of the horrible things you've said on some of her other videos?

[danthehempsmog]

@stilesmarsha RIP rockerchik76

[sehan1228]

@peaceduv02 Unfortunately, yes it will.I was diagnosed 3 years ago with types 3 & 4.Its not easy, but most can live a mostly normal life.

[danthehempsmog]

@stilesmarsha I know, it's horrid news. RIP tracie

[stilesmarsha]

@danthehempsmog WHAT?????!!!!

[danthehempsmog]

@stilesmarsha rockerchik76 died. RIP