Update to my Ehlers Danlos Syndrome
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8:48
Real Life Living with Ehlers-Danlos Syndrome episode 7by angelEDSer1,416 views- 5:12
My life as a Zebra... with Ehlers Danlos Syndromeby jkweirich5,057 views
- 3:50
Things that have helped my Ehlers Danlos Syndromeby rockerchik764,254 views
- 5:29
Update on Ehlers-Danlos Hypermobile Spineby Elfins1,851 views
- 6:33
EDS- the beighton scaleby engodo25254,349 views
- 5:23
EDS earby engodo2525869 views
- 2:37
Examples of hypermobility with Ehlers Danlos Syndromeby rockerchik7625,955 views
- 5:26
Important Ehlers Danlos Syndrome stories I wanted to shareby rockerchik762,557 views
- 3:38
Ehlers Danlos Syndrome - Dying to Liveby rarediseaseday8,096 views
- 8:29
Ehlers danlos syndromeby EDSGIRL0211,409 views
- 7:09
Physical Therapy: Ehlers-Danlos Syndromeby vivisonga11111,149 views
- 5:37
Ehler's Danlos Syndromeby UMichDent2,561 views
- 3:11
Ehlers-Danlos Syndrome.... Nothing Hurts in my World.by Elfins29,748 views
- 4:21
EDS and FMS Part Vby ShinyShirts8,153 views
- 0:14
Hypermobile Jointsby dixwyn16,103 views
- 5:57
eds.flvby infolady35915 views
- 3:22
How Many Spoons Does It Take?by SusanS9999329 views
- 2:00
bendiest girl in the worldby totaltoning1,245,726 views
- 8:08
Silver Ring Splints for Ehlers Danlos Syndromeby vegandanielle4,736 views
RIP Tracie, you are missed.
danthehempsmog 2 months ago
@HazelLangford whoever disliked this is an $#%$^&
pamplify 7 months ago
Why exactly is walking difficult for you? For me, it was horrible sciatic pain that i just thought was associated with ED...was always on crutches. But after many many MRIs it was found I also have ankylosing spondylitis, which can be related to hypermobility. I was put on Enbrel injections that have helped SO much with walking and now after years of not being able to walk I now can. I'm still in pain and limp, but I am so much better.
jennadrums 9 months ago
When I searched for Ehlers Danlos on youtube I figured I would get no good results. This is exactly what I wanted, someone who understands and is going through it as well. I'm watching all your videos, you have no idea how much you are helping people, thank you so much!
jennadrums 9 months ago
who the hell disliked this!?!?!
HazelLangford 10 months ago
your really pretty :)
adamwiesner1 10 months ago
I wanted to leave my email.
If you ever need to talk. And wanted to know what you thought about me saying anything to my dr. About the disease. How is it diagnosed? Blood work? Thanks.
Kittencuddler68@msn.com
Denise in Maryland
Kittencuddler 10 months ago
I first want to say your in my Prayers. Your a very strong person.
I was told I have Fybromyalgia about 10 yrs. Ago, then I got severe arthritis in both feet at the same time, they have never seen that, my feet are turning outward, I have arthritis in both knees, I also have nerve damage in both feet & lower legs, which they don't know why, all this started when I was about 30, I'm 42. I haven't been able to drive in 8 yrs. Have to walk with a cane, sometimes my hips hurt so bad , it feels like
Kittencuddler 10 months ago
god, i have eds type 3, and doctors are just rude to me if i go in on the super bad days. keep on rocking.
NinjastormVII 1 year ago
my son and i were just diagnosed yesterday with EDS hypermobility ...i havent seen my mom for 20yrs but i hear she has arthritis really bad and my grandma was in a wheelchair because of it..my mom also has had some heart problems .i didnt even know what EDS was until yesterday..we are waiting for my son to go in for a echocardiogram..anyways , i was looking to learn more about EDS..thank you for sharing your videos..
calbri27 1 year ago