Myoclonic Seizures
Uploader Comments (tjsstj)
All Comments (31)
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I don't understand this. A kid drinking out of a sippy-cup. Am I missing something here?
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@DJLava85 Wait, not everything on youtube is REAL?
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I'm a medical student and I just needed to see this for myself... Thank you for posting.
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@DJLava85 , you clearly need to get a better hobby, and might want to think about changing your job. Clearly you don't know what your talking about.. And clearly the medical school you attended was nothing but b/s.. So quit wasting your time and commenting on others videos when you don't understand what is going on in this typical situation..
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@tjsstj I just wanted to say thank you for posting these videos. I have a little girl who is 18 month now and has Mayoclonic seizures. As I try to learn more about her condition I find hearing and seeing other peoples stories is the most helpful. I hope your son is doing well and thank you beacuse I know you saying it is hard to watch them is an understatement. You are a strong mom!
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mãe cuidado meu filho começo assim hj ele esta bem melhor mas as crises tende a aumentar se não cuidadas,meu hj usa o topiramato e gardenal foi o unico remedio q deu certo para ele.
I just want to make it clear that I do not post videos so that people can argue about what seizures are or who is right or wrong. I posted them to help other parents in the same situation as my family. I found that when Sean began having new seizures, it was alot easier to see them actually happening on here. So please no more arguing or I will remove this video as all the arguing is defeating the real purpose for me posting them in the first place. Thank you to all of those who show support.
tjsstj 1 year ago 6
I am a medical professional. Hiccups are NOT seizures, the diaphragm is a muscle and like other muscles as in your legs and arms can have spasms, thus causing hiccups. The muscle spasms in your leg or arm while sleeping or falling asleep is caused by your body going from their active phase to their resting phase! Whoever you are or whoever gave you this information needs to do their proper reading. This is truly bullcrap!
DJLava85 1 year ago 5
@DJLava85 Then you might want to go and proof read a fair few epilepsy websites and tell them that they are sharing the wrong information. Oh and I didn't read about the spasms when going to sleep at night being seizures, that information was shared with me by a clinical nurse consultant for neurology, a neurologist and an epiologist as I was concerned about Seans Sleep Myoclonus (Which for Sean ARE seizures as proven by EEG)
tjsstj 1 year ago
As a mother of a 9 year old daughter with Lennox Gastaut syndrome I also have put my daughter having many different types of seizures on youtube to raise awareness. I didn't konw Amy was having a seizure, I thought it was because she's autistic. Christy
girlchristian1 1 year ago
@girlchristian1 I am so sorry about your daughter having LGS there is a great support group on facebook for LGS they thought Sean might have had LGS but figured out it was Dravet instead.
tjsstj 1 year ago