Charise - Albinism and other Medical Problems - Documentary

Join us for an intimate look into the life of Charise Johnson, a vibrant young African-American woman with a 10-year-old son and a busy life. When you first see her you can tell right away shes different. Charise has Albinism. And when you get to know her you will discover she really is different and theres nothing wrong with that.

In 1974, when Charise was born, a childhood free of major health problems is not what life had in store for her. At the age of nine she was diagnosed with Ulcerative Colitis. By the time Charise became an adult, she'd had several surgeries, a temporary ostomy bag, and ultimately had her large intestines removed entirely; after which she developed Crohn's disease. Arthritis has left her in need of knee replacements and a lifetime of damage to her skin from the sun has lead to re-occurring skin cancers.

Charise, being blessed with a mature and supportive family had incredible support throughout her developmental years. They are what kept her grounded when the social pains far outweighed her physical ills. There was no shortage of bullies and teasers in Charises life. Even as an adult she cant escape the verbal abuse of strangers with statements like what are you?.

In Charise: A Portrait of an African American with Albinism, Charise shares with us, her pains and her joys. She talks about her family life and what it is like having Albinism from medical, social and personal perspectives.

Category:

Entertainment

Tags:

• yt:crop=16:9
• bully
• albino
• albinism
• black
• african
• pigment
• genes
• sunburn
• skin
• cancer
• colitis
• ulcerative
• ostomy
• ocular
• vision
• blind
• color
• race
• ethnic
• ethnicity
• fight
• argue
• family
• relationships
• values
• love
• documentary
• genetics
• photography
• dvx100
• independent
• film
• Tampa
• Florida
• Plant
• High
• School
• loyal
• affection
• siblings
• brother
• mother
• father
• dad
• mom
• beach
• movie
• children
• charise
• women
• woman
• girl
• lady
• son
• child
• african-american
• beauty
• beautiful
• pretty
• self-esteem
• genetic-disorder

[Timaya]

Loved it! Great job

-Qaadir

[IjabaFilms]

Thanks!

[celena33212]

@IjabaFilms I've noticed that her weight seems to fluctuate. I also tend to notice some albinos are grossly overweight and some seem soooooo underweight. Does albinism affect one's body size/weight? Just curious. She is beautiful.

[IjabaFilms]

@celena33212 I'm not sure about your observations. I haven't noticed that. However, Charise has had Ulcerative Colitis since she was 9 years old. Now she has Crohn's Disease. So her weight does fluctuate. 

[randomgurf2011]

I really want to cry she is perfect :)

[Blackbarbietea]

She is so pretty.

[londonpie72]

I have albinism but God made us special and my system also has albinism my skin is really light and i have poor eye sight but now 21 living life and making the most of it

[karlibirgun]

i am an albino and i suffer from chrons disease

my son is also an albino

i can feel your pain. i like your video . take care

[decoren45]

she is absolutely beautiful,

[Dom2dom2]

I loved this video of this amazing girl with a great spirit. The story is heart touching to many people.

[blondie87tv]

I know what she talking about. I am an Albino myself.

[vennyvee1]

my niece may have this condition on her arms. lots of peeling and sores where the sun burns