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Dystonia during a heat wave

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Uploaded by on Aug 6, 2011

It's been over 100 degrees in Dallas for 30-something days now. It makes my Dystonia a MONSTER! I purposefully shot this on my front porch at noon to show you what it does to me. I'll be a wreck for the rest of the day, but it needs to be seen!

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  • Amy... You are a very strong woman, I admire you. I have problems with muscle spasms as well, but not nearly to the extent that you do. I currently take zanaflex. My muscle spasms are from a herniated disc that possibly damaged my spinal cord. I had a cervical fusion, but the spasms never really left. Good luck to you, I wish you the best. You are in my prayers.

  • Just discovered you, Amy.

    I think you're amazing. Wish you all the best for the future.

  • Hi Amy, just want you to know that you are a true inspiration, you just keep smiling no matter what, I love you... Big hugs from Norway.

    I just wonder about one thing, what was ypur first symptons of dystonia?? Did it start suddenly or gardualy?

  • Thank you Amy for sharing with us. This heat I agree is horrible. I'm looking forward to cooler wheather myself. I just wanted to say not everyone can look good with short hair but you look good with it. I know not your choice, but you wear it well. ;) You are an inspiration Amy, don't forget that...

  • You are incredible for doing this for us.I hope the heat decreases as soon as possible!

  • Yuck!! I hate the heat!

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