Little Miss Hannah - Our Fight Against Gaucher's Disease type 2 or type 3
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Uploaded on Feb 24, 2009
http://www.littlemisshannah.com - Our 7-month-old daughter was diagnosed with Gaucher's Disease type 2 or type 3, a very rare, fatal, genetic metabolic disorder with painful physical symptoms, severe neurologic decline, and a very short life expectancy. Please help us fight to save her life.
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Top Comments
LordOut16 4 years ago
It's too bad we can't make a movie about rare genetic disorders to raise awareness. My prayers are with you.
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LordOut16 4 years ago
My Daughter has Gaucher 1
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Video Responses
All Comments (18)
orderedbullet 1 year ago
I just want to say thanks for sharing this. I am 27 with gaucher type 1. I have been getting treatment since I was eight. My veins have been giving me a hard time and they are wanting to put in a port. I have been scared and depressed for a while now and even lost my fight and began missing treatment. I have to say that after watching this I feel so much better. Hannah has given me my fight back not only to fight for myself but for her and others like her. One day we will find a cure! T
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jjac31456287 2 years ago
omg im cryin please God save this poor innocent lil gurl and all people that are diagnosed with this disease. its not fair to have to see people go through this. if u knew the answers to the world i would tell all so that no peoson would have to suffer from this.
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Karen Carlson 2 years ago
I was diagnosed last month but I am 18 I rly hope somehow Hannah and I can find a way to feel better and I appreciate this post to help awarness Thank You
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LauraBeth Villarreal 3 years ago
Please let us know how baby Hannah is doing. My cousin's son has a metabolic disorder too and I've been standing by her side through it all though I've never actually seen in person what her family goes through. My daughter has traits of the disorder as well, in the form of food intolerance.
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zanessacutie1000 4 years ago
I'm praying for hannah
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Shade Sparrow 4 years ago
Maybe with these YouTube videos we can get the word out and help find a cure for these aweful diseases. I wish you all the best.
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Petula Wright 4 years ago
Hi Mommy :)... I'm going to post the video on my blog. ... I'll try to post it on both blogs (I am still learning the other one.) TTYS
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AddiCassiFund 4 years ago
Hannah, you are beautiful and we love you so much.
Addi and Cassi
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