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Little Miss Hannah - Our Fight Against Gaucher's Disease type 2 or type 3

JeansMommy JeansMommy·37 videos
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Uploaded on Feb 24, 2009

http://www.littlemisshannah.com - Our 7-month-old daughter was diagnosed with Gaucher's Disease type 2 or type 3, a very rare, fatal, genetic metabolic disorder with painful physical symptoms, severe neurologic decline, and a very short life expectancy. Please help us fight to save her life.

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Top Comments

  • LordOut16

    It's too bad we can't make a movie about rare genetic disorders to raise awareness. My prayers are with you.

    · 10

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  • LordOut16

    My Daughter has Gaucher 1

    · 9

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Video Responses

This video is a response to Living with Gaucher Dx.

All Comments (18)

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  • orderedbullet

    I just want to say thanks for sharing this. I am 27 with gaucher type 1. I have been getting treatment since I was eight. My veins have been giving me a hard time and they are wanting to put in a port. I have been scared and depressed for a while now and even lost my fight and began missing treatment. I have to say that after watching this I feel so much better. Hannah has given me my fight back not only to fight for myself but for her and others like her. One day we will find a cure! T

    · 4

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  • jjac31456287

    omg im cryin please God save this poor innocent lil gurl and all people that are diagnosed with this disease. its not fair to have to see people go through this. if u knew the answers to the world i would tell all so that no peoson would have to suffer from this.

    ·

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  • Karen Carlson

    I was diagnosed last month but I am 18 I rly hope somehow Hannah and I can find a way to feel better and I appreciate this post to help awarness Thank You

    ·

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  • LauraBeth Villarreal

    Please let us know how baby Hannah is doing. My cousin's son has a metabolic disorder too and I've been standing by her side through it all though I've never actually seen in person what her family goes through. My daughter has traits of the disorder as well, in the form of food intolerance.

    · 2

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  • zanessacutie1000

    I'm praying for hannah

    · 3

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  • Shade Sparrow

    Maybe with these YouTube videos we can get the word out and help find a cure for these aweful diseases. I wish you all the best.

    · 6

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  • Petula Wright

    Hi Mommy :)... I'm going to post the video on my blog. ... I'll try to post it on both blogs (I am still learning the other one.) TTYS

    · 6

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  • AddiCassiFund

    Hannah, you are beautiful and we love you so much.

    Addi and Cassi

    · 5

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