emily's spina bifida vlog (part 1)
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Uploader Comments (blahblahblahEMILY)
All Comments (25)
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Im 27 and have Spina Bifida. I have zero health problems due to it. I rarely give it any thought at all. I do have the hole at the lowest part of my spine. Ive only just today started doing some research about it. I feel kinda bad about that, I should know more about this. Its been very interesting watching videos and educating myself.. Im feeling very grateful that i have no symptoms at all.
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I'm 15 and have spina bifida and it is great for someone to speak out and show people even though it's almost invisible for people to see it's not invisible to the people living it like me I look like a short 15 year old but only my closest friends and family know the truth
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You are a real inspiration for other people. This video is excellent. You are a beautiful and strong young woman. Keep doing this and your music: what a great combo. God Bless you. Don't stop what you are doing.
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My name is Hope and I am 18, and I was born with spina bifida. I am currently attending New Mexico State University. My condition is not really severe as you said "it could be a lot worse" the only problem that i have is with walking, but actually when i go see a doctor and they hear of everything that I am able to do in life they are amazed. I also have the support of my friends and family which really keeps me going.
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Man ... You have really really pretty eye and thank you for posting vlogs like these .
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I am a 33 year old male with Spina Bifida. No one can really tell that I have it physically. Until you get me doing physical work. Cause it does effect my back and leg. And my memory really sucks as well. Anyway , anyone around my age that wants to ad me as a friend then go ahead. Including you Emily. Very nice blog you have here.
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My daughter was just born with Spina Bifida. It was good to see a vibrant, intellegent young woman with this condition. I will love her regardless of her problems. But it is helpful to see a person like yourself. Thank you for giving me a glimmer of hope.
squitmaa 1 year ago
@squitmaa welcome to the wonderful world of spina bifida :p thanks so much for the nice comments; if you have any questions or concerns regarding stuff your daughter will be dealing with throughout her life, please don't hesitate to drop a line in my inbox. i'm a pro when it comes to SB. good luck!
blahblahblahEMILY 1 year ago
Well it is nice to meet you ! I also have spina bifida. If you would like to chat more let me know - i have yahoo messenger and just got skype.
nolimit88 3 years ago
i have skype, too. i don't use it so often, but i suppose i could send you my username in a message ;)
blahblahblahEMILY 3 years ago