Movement Disorders in RSD / CRPS

Video showing my 13 year old daughter who has had RSD for 13 months and has developed movement disorders to the leg and toes

Category:

Science & Technology

Tags:

• RSD
• CRPS
• Leg
• Spasms
• Tremors
• Movement
• Disorder
• Spasm
• Tremor
• Shaking

[ajkay159]

Hi Acheese9,

Thank you so much for the comments and the well wishes - I really appreciate you taking the time to write to me!

I am unable to go to school at the momet although I do have a tutor that comes to my house 3 times a week. I miss not being able to see my mates that much.

Yes, my leg is very painful - especially when it shakes!

Alison

xxx

[ajkay159]

Hi

Thanks for all of the comments.

Amy - I am so sorry that you are dealing with RSD and I hope you start feeling better soon

Thanx

Alison

[loveallzebra1]

i have this too

[skiracer110]

Your dog is freaking. Hope your daughter feels better

[tjknit]

I want to thank you for posting your leg spasming on to you tube; My 9 year old daughter developed a spasm in her left leg after being put in a half cast the whole length of her leg when her patella slipped out. We were told her spasming was a behavioural problem etc etc but after watching your clip on searching child leg spasm on google I went to the consultant with your link...thank you , we still have a way to go but she is finally improving thanks to early diagnosis!!!

[isthisthecure4rsds]

I think I can help others get rid of their RSDS pain. Search for my username and find my blog and you can make up your mind. I'm not making a penny (yet, but maybe if others agree I'm right I can) on this, but I think I can help others....

[TheMarianneRose]

My daughter has CRPS as well and was diagnosed very early. Thanks to the doctor who told us that medicine really had nothing to offer, we started doing many different complementary therapies. We did Reiki, EFT, Kinesiology, Aromatherapy oils, Homeopathy medicines, took her for Acupuncture and have seen amazing results. She is almost better and is claiming her life back. Find someone to do these things if you cannot do them yourselves. It is so worth while. God Bless you all.

[Alface3654]

god im going to hell for laughing at this. Sorry

[jbecks94]

hi im 15 and just got diagnosed with rnd ( reflex neurovascular dystrophy). This happens to me every time i try to move my legs. It just recently started in my shoulders and hands too. It takes so much energy and i understand what you are going through.

[eyedea81]

a difficult disorder to understand. most neurologist will dismiss this disease as a pseudoneuropathy of psychogenic orgin. too many studies with no clear evidence of medical understanding. same can be said of posttraumatic dystonia.

[samgerke]

Check out my wifes rsd story and the products she found thay helprd her

go to askmara Sam

[kamrynblanchard1]

I have the TENS unit but its not implanted and i have RSD in both of my legs from the knees down and in my arm from my shoulder to my fingers. The TENS unit works really well.