"Mystery Diagnosis" - SMA Syndrome - Part 1
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Hi Samantha, could you please contact us on the sma my niece has been diagnosed with it and we need your help. scrapmetalsinc@yahoo.com
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I love her mother's Egyptian accent <3
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87 pounds?! Thats exactly how much I weigh and I'm 11!!
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Samantha thank the Lord you are all healed today.
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my friend has this..her name is Jennifer. One of the salons in my city are putting purple streaks in hair for $10 to help her and raise money for SMA awareness! I was the 2nd person to get my streak. Please pray for her!
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I had this for 1 year
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You may but,just bare in mind that it is extremely rare and unlikely. I would make an appointment with my regular Physician or a Gastroenterologist.
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@MrsJSCarlile thats is very good to hear, i just had my sma rerouted and unfortunately 4 weeks post op symptoms still remain :( so i guess the duodenjejostomy or whatever will be my next step...very positive to hear it has helped a lot...
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@dionstrezlecki - I am approximately 95% better. I have not had ANY of the problems others seem to have had after their surgeries. My doctor was a blessing. My doctor knew what my condition was immediately, treated it immediately and made sure I was completely informed of my condition. Furthermore, he was the most kindest physician I have ever had the pleasure of meeting. I was extremely blessed to have him. I must still watch what I eat at times, however, that's a small price to pay!
@montanerfan10 - With only ~500 recorded cases in history, a demographic of 0.013% and a mortality rate of 1:3, SMA Syndrome is one of the rarest disorders known to medical science. Currently, it is recognized by the Canadian Rare Disease Foundation, but not by the US National Organization for Rare Disorders (NORD).
RedViolin87 1 year ago 34
I think doctors need to watch this show as part of there study could really learn something from it and those who have SMA ,I send out my prayers to you, God Bless
kathycuddles 1 year ago 25