How do you Cope ? by Greg Crowhurst
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3:39
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Greg, You and Linda are quite an inspiration to me. You will both be forever on my heart. My husband, Michael, suffers much like Linda ... bless her heart and yours too for taking such good care of her.
Valerie
WrightNightmare 1 year ago
How do I cope? Honestly not very well a lot of the time. I do know that i do the very best I can every single day. I often feel like giving up and killing myself and then I get through it and deal with each day as it comes.
Take care my friend.
Love and strength to you.
xxx
deadgirldreaming 3 years ago 2
As you know, Greg and Linda, God has taught me so much through suffering and your lovely book was very helpful too. There is something mysteriously beautiful that happens in our walk with God when we suffer, something to embrace and not to fight. That's not to say that we do not wish to be well, of course, and my prayers continue for you both. With love and compassion in Him, Nigel XXX
ivortick 3 years ago
I thank God for the Internet. At least we all know we are not alone in this.
I've had this disease for seventeen years. Basically, I cope by not dwelling on it, unless I'm flaring. I just do what I can do in a day. Even if it is a very small goal. If all I did that day was bring my mail in or cook something, that's big. Baby steps.
Just keep the faith. We are doing exactly what God wants us to do. God gave us this for a reason. Have faith that one day, we'll know the full reason why.
Carrigon 3 years ago
And you're right regular e-mails and other kinds of contact really really help with the isolation and can help lift your spirits and get you through the day. It's good to reach out.
If suffering is like a teacher then I hope we all become wise. Wishing you and Linda and everyone else who is effected by ME peace and happiness.
patrick3235 3 years ago
'Out of darkness cometh light' is a phrase that springs to mind. I think you learn a lot through suffering, although it can leave you feeling bitter, angry and frustrated at times. I guess the trick is to learn to let that go, although that is easier said than done at times. Well it is for me! Since this illness stopped me dead in my tracks I've had a lot of time to think about things that I might not have done otherwise and I think I've become a better person for it in many ways.
patrick3235 3 years ago
Also reminding yourself that one day the truth will out, just like it did for HIV and MS sufferers.I cant wait until that day comes and I can turn to my so called friends and say I told you so!
angelsolace 3 years ago
I think the way to cope is reminding yourself in the tough times, that you have had happy times, and will do again. Sometimes not living in the moment can be better.
Also remember that there are also people better and worse off than you are. Whilst I am lucky to not have ME quite so bad as Linda does, and somedays I do manage to get out, I think she is so lucky to have you Greg, as living with ME, when you're totally alone and isolated is real tough.
angelsolace 3 years ago