50 in 52 Journey interview of Eve Lapin, mother of three boys who started the Stop ALD foundation in memory of her oldest son who died from misdiagnosis and in honor of her middle son who lost the use of his legs after his bone marrow transplant. She is dedicated to making others aware of the disease and finding a safer cure.
very grateful for anything that will bring awareness. i have a video on here also that i made recently. its under "ALD Lorenzo's Legacy", features a good number of boys in all conditions of ALD.
marinemomkerry 1 year ago