Living with MS for 9 Months

In this video I share some lessons learned while living with MS for 9 months. I also talk about some new symptoms that I'm currently learning to live with.

Category:

People & Blogs

Tags:

• MS
• mymsjourney
• multiple sclerosis
• neurological condition
• memory loss with MS
• fatigue with MS
• cognitive fatigue with MS
• confusion with words with MS

[cabernetqueen]

glad to get to be briefed on this part of your life... I love and respect you so much

[MyMSJourney]

@cabernetqueen Thanks Sally :) Love you back!

[irviki55a]

The steroids probably helped with the ON, even though you didn't notice it (stopped it from getting worse). I also have heat intolerance and cognitive issues. Actually, what first got me worried was starting to lose my memory and getting words mixed up both in writing and speaking. My job consists 90% of writing, so it is a serious issue for me, but I'm getting around the problems fairly well now, although I'm slower than I used to be.

[MyMSJourney]

@irviki55a Thanks for helping me look at the ON that way :) What is one tip you can give me on the writing challenge? With speaking I simply try to slow down to help that.  Thanks Tamika!

[gekiryudojo]

your doomed! if you take the MS Drugs! take LDN only, I have had MS since 1995 my wife since 1987 both do well without MS Drugs I am RRMS she is PPMS but those are just labels so don't let anyone give you a label you will live up to it, btw we are both CCSVI liberated

[MsNossasenhora]

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[TheBrownBruh]

damn, I didn't know black people got MS

[PsalmsNmyrrh]

I am finding that I cant spell, remember or focus my thoughts enough to form a proper paragraph..like I am rambling...I am not crazy I know now what this is but I am going to fight it. thank you for sharing this.

[MrZombiemom]

Thank you again... I just wanted to post the spelling of UHTHOFF'S Syndrome. Thank you and GOD BLESS... I also type and write different from what i want.

[irviki55a]

@MyMSJourney Use a spell checker (although you probably already do). I didn't need it before as I was fast and accurate typist, but now I need to check and re-check. It's frustrating, but it's a lot better than not being able to work at all. Fortunately, my MS is progressing very slowly. It probably started over 10 years ago, but only now the symptoms have become bad enough to cause real problems.

[christinedavi]

great video update. Your brave and optimistic.