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My MS Journey: Nov 09 Update

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Uploaded by on Nov 10, 2009

I have recently had an MRI and visit to the Neuro. Just a short update on how I am doing and how things are going on Tysabri

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Uploader Comments (kezzcass)

  • God Bless you. I hope you are feeling well. Are you taking a bunch of Vitamin D3? It has been shown to down regulate the cells believed to attack the myelin sheath.

  • @harmagician1 Hi. I am feeling very well at the moment thanks. Yes I started taking Vit D3 about 18 months ago and now keep my levels between 130-140. I will be interesting to see what the current studies show as to whether this is helpful. In the meantime, I figure it can't hurt.

  • Hi Kerri

    Wishing you love and light..You helped me today. A lot of the things you say are exactly how i feel. I am heading to the M.S clinic which is about a 2 hour drive. Going on Thursday the 10th. I will let you know how that goes. I have high hopes, just like you did before starting the Tysabri. I know how it feels. Thanks for brightening my day .

    Ianthe

  • Thanks Ianthe, Wow 2 hours that's a long way to go! Incidentally I see my Neuro again same day. Hope we both have a good appointment. Looking forward to hearing how you go :-) Kerri

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  • Hey Writerdust - I actually have seen that article. Someone suggested it after a video I posted about how to manage you energy coins. It is oh so true! xo

  • Your frankness is refreshing. You're facing a disease process that has up rooted your life. I understand the energy level. There is a really neat story about 'spoons' that I'll try to find and send to you this weekend to share with you... hopefully it will fit in the YouTube video email system. ✝ May GOD bless you this week.

  • True. I don't have the energy to try and keep everyone else feeling good about me!

  • There are folk that don't appreciate MS reality, just want a happy face-no-matter-what.

    There are always these folk who want to dye their hair to look weirder than they think they are.

  • Hi Jessie, hahaha yes - but doesn't everyone else know it's they who have an accent??? LOL! I would be interested to hear how you go after seeing the Neuro - send me a message. Thanks for saying I look great - I can handle being told that even if I do feel kinda ordinary. Kerri xo

  • Thanks - I know you are right :)

    Kerri xo

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