look retard this video makes me sad so change it because i have mar fans so listen here i am 12 years old and i will not die from mar fans because i have been to a cardiologist recently my name is Hayley and i have this syndrome i wear extra thick glasses and my spine makes an S but i act and feel like a normal kid so change the music because i am very sad now GOD FREAKIN RETARD!!!!!!!!!!!!!!!!!
@Xxcharli3xX It started at age 11 but I managed to get a doctoral degree in medical research (oncology). It has been hard to pull a career with this but I trudge along. I dont know how much time I got know as my heart may be failing.
jamesscandrett: You are wrong Marfan syndrome is autosomal dominant ie you need only one bad copy of the gene. So if one of your parents has it you have a 50% chance of getting it. If you get two good copies of the FBN genes from the parent who does not then you are OK. If both parents have Marfan then you will get it for sure. (100% chance.)
@JamesScandrett
Marfan's can occur as a new genetic mutation in a person when there is absolutely no family history of the disease.
kcr1662 1 year ago
THANK YOU
2121hayhay 1 year ago
look retard this video makes me sad so change it because i have mar fans so listen here i am 12 years old and i will not die from mar fans because i have been to a cardiologist recently my name is Hayley and i have this syndrome i wear extra thick glasses and my spine makes an S but i act and feel like a normal kid so change the music because i am very sad now GOD FREAKIN RETARD!!!!!!!!!!!!!!!!!
2121hayhay 1 year ago
@Xxcharli3xX It started at age 11 but I managed to get a doctoral degree in medical research (oncology). It has been hard to pull a career with this but I trudge along. I dont know how much time I got know as my heart may be failing.
marfaned 1 year ago
jamesscandrett: You are wrong Marfan syndrome is autosomal dominant ie you need only one bad copy of the gene. So if one of your parents has it you have a 50% chance of getting it. If you get two good copies of the FBN genes from the parent who does not then you are OK. If both parents have Marfan then you will get it for sure. (100% chance.)
marfaned 1 year ago
@marfaned i no do you have it then?
How old are you?
I've only had two but having another 2 this year
Xxcharli3xX 1 year ago
yes
JamesScandrett 1 year ago
Marfan's syndrom doesn't just come out of nowhere it's a recessive gene
JamesScandrett 1 year ago
This syndrome is a hellish curse. 6 surgeries and counting...
marfaned 2 years ago
why putting a quite sad song? are you trying to make people feel bad about themselves?
nirvanafrik 2 years ago