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Zoe Episode 2

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Uploaded by on Nov 11, 2008

Misdiagnosed as seizures, it took us months to discover that these episodes are actually Sandifer's Syndrome - a condition directly linked to her (very common) acid reflux/GERD problem. Zoe has one of the worst cases of Sandifer's ever seen by the specialists at the University of Michigan Hospital, and was misdiagnosed by many Pediatric Neurologists and staff at both Troy and Royal Oak (Michigan) Beaumont Hospitals and Detroit Children's Hospital. She had to undergo countless unnecessary tests and hospitalizations (including CAT, MRI and multiple PET scans, 3 EEGs, and a sleep study.)

Though I am only showing a portion of one of Zoe's most recent firs episodes here, it typically takes Zoe anywhere from 1-2 minutes to come out of her trance-like state and begin to see the world around her again.

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Education

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Standard YouTube License

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