Limb Girdle Muscular Dystrophy Jamie Breslin
Uploader Comments (hereisjamz)
Top Comments
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Great job, I think. You really get the point of being a guinne pig, I can relate to this! I come from a small town and they don't even know what to do for me. I'm thankful for the MDA near me, if it wasn't for them, I wouldn't know what to do. I too have LGMD and symptoms started around 20 something. Keep on keepin on.
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Hey! Im a female who has LGMD & the timelines are very similar to mine, Im 27 now. Big thumbs up to putting this online & letting others see how it is to live with this disease! I havent quite reach that severity, but I know its around the corner. *Mirabel
All Comments (39)
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this is awesome! i have lgmd as well
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hey jamie s me your homeboy keep sendme masseges I will to talk to you one day,,, make realt this dream thanks.
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@yulesify Yeah man, I'll talk to you.
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@hereisjamz hey whats up im juan have LGMD I will like talk to you I star whent I was 17 now I getting words I hope you answer my massege thanks my brother never give up .....
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@yulesify Thank you, man. Wish I could help.
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@Teufelsding Thanks, you're sweet.
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Man, you're awesome.
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Love this! I've been hospitalized since oct 3rd for bedrest till my due date which is march 9th. When I arrived i told them I have mitochondrial myopathy which is what I was told is wrong with me but they knew w/me living a lifestyle freely as I did, not seeing specialists for over 14 years, & the particular areas I was only weak in they knew that had to be a wrong diagnosis. Finally on November 12th, this past thursday my dna results came in and I have the LGMD. Its such a relief now knowing.
hey jimie is me juan you have facebook thanks brother
yulesify 1 month ago
@yulesify facebook/hereisjamz
hereisjamz 1 month ago