Living with Multiple Sclerosis: My 6thTysabri Infusion and my Garden Room

This month things have been definitely more difficult than during the previous ones.
I am experiencing very difficult cognitive problems that include symptoms such as pain, pressure, confusion, not understanding things, not being able to express myself and to remember things. There are times when I am overwhelmed by millions of thoughts that keep on coming into my head and that I have no control over and then there are times when I have difficulty thinking, trouble creating a single thought and retaining it.
My sense of comprehension is limited at this time and I cant understand things. I have to be told the same things many times and the sense of confusion I feel is enormous.
I cant understand. I cant write. I cant read. My mind is overwhelmed with pressure, pain and confusion
I can definitely say that this is the WORST symptom I have ever experienced.
How do I deal with all of this and with all the day to day problems and changes that I experience? Just like I said in my videos and in my letters, I count on the happiness that I feel when I think of what I am still capable of doing and the special people, places and things that are such an important part of my life. While my MS journey is looking like it is not getting any easier, I can promise you that it is not a sad journey because I try to
find happiness in the smallest things

Category:

People & Blogs

Tags:

• Living
• with
• Multiple
• Sclerosis
• MS
• Flowers
• Gardens

[missalgernon]

Hi! That was really interesting. Im so sorry that's happening for you. You always seem so positive and its inspired me too. I have been feeling really good lately, other than my legs. Im lucky that I dont have any serious cognitive problems so I can only imagine how hard it must be, i love your idea for a garden room. i love my garden and Ive been missing it a lot. My partner is working out a way I can access it with the scooter whcih Im excited about. Thanks for subscribing to my channel too!

[angelusa73]

Dear Amanda,

I am so glad that your partner is crearing a garden that you will be able to enjoy when you have to use the scooter! That is wonderful and I am very happy for you!

About my cognitive problems, I can tell you that I find this to be the worse MS symptom for me and I have tried way too many symptoms already!!! Not having control of my mind is not something that I like very much! I will have to learn how to deal with this too and keep on doing the best I can.

Best of luck to you too!

[Renoandi]

First your flower room is beautiful! As for the cognitive problems, I know what you mean. I get the electrical feeling down from the base of my skull through my whole body.

If I move or bend the wrong way it happens and then my body goes into spasms, like a seizure. My brain totally stops working and then the anxiety attack comes on and makes it worse.

Like you said we are all so different and yet the same with MS, being the link that binds us.

You know I try and do what makes me smile!

[angelusa73]

Hi Andrea,

first of all, I would like to thank you for coming to see my video and for sharing your personal experience with cognitive issues and eletrical shocks. You are absolutely right in saying that, while we are all experiencing different symptoms and different severity of them, we are all linked together because we all have MS and this helps us understand each other.

Creating the garden room for me was sort of therapeutic and it helped me go through the month. Best wishes to you.

Hugs

[isa2222]

The flower oom looks lovely well done !

[angelusa73]

Thank you Isabella, I am glad you like the flowers I painted! I love them so very much too!

Take good care and don't work too much! :)

Bises,

Angela

[BlissfulinAZ]

Angela,

Thanks for all your videos. I, too, am having serious cognitive issues and it can be so depressing. Since my diagnosis 9 years ago, I always told myself I would never end up in a wheelchair. It didn't occur too me that I would lose my mind!!

I agree with you that the cognitive problems are even worse than the physical ones...It is very scary to see myself going downhill and I worry about where I will end up. I just wanted to let you know that you're not alone.

Regards,

Patrice

[angelusa73]

Mio caro Primoz,

you came to see my garden live!

I did send you the photos of it, remember?

Now you got a chance to see it on video too! :)

I am glad you liked it and I so wish that you could come here and sit in it with me while we chat...and while the gelato here is not that good, we eat some anyway and enjoy it in the garden room!

Have a good night, my friend...

Baci,

Angela

[HubertV2]

My dear Angela !

I like your flower room very much and I am so glad you can finish it !!!

MS is stupid thing I know had one of my oun but it is good that you are so optimistic that is what we can do about it !

Primoz