SLE Lupus Foundation Gala Video, 2006
The S.L.E. Lupus Foundation, headquartered in New York and with offices in Los Angeles, is one of the leading lupus organizations in the country providing patient services, education, public awareness and funding for lupus research. The Foundation vigorously addresses minority outreach through its Lupus Cooperative of New York—a community based national model demonstrating the effective management of chronic disease among minority women. To date, the Lupus Cooperative of New York has reached out to more than 30,000 people and provided direct services to nearly 1,100 people in New York City.
I'm so sorry for your loss also for navet85 So sad to read this.
I, as a European, am so grateful how hard you people work to raise awareness and work to find a cure. Its not the case here. After being diagnosed 10 years ago with a 'mild sclerodermia' while I thought, back then yet, it was lupus. Its now at last diagnoses last March 2008. My life has changed so much. Its very comforting to read and share this with others here. Thanks for all for everything.
AdrianaJosina 3 years ago
Thank you for sharing,I am sorry for your loss of baby. I lost for fourth baby and have (three live children) I did not know i had lupus until my loss.
Bless you
navet85 3 years ago
Does that mean... I should just give up? :'(
codeRania 3 years ago
I have had Lupus SLE for 13 years. I also have Fibromyalgia, and RA. I do believe we need more awareness, may people think if you don't look sick, you aren't. I would love to have my life back. I pray for it and all of you. God Bless
nanafromuncieindiana 4 years ago
im diagnosed last october im a positive lupus patients.
khalel214 4 years ago
I have Lupus,psoriatic arthritis and gastroparesis. At first I was misdiagnosed with Multiple Sclerosis.I've just joined the lupus foundation and will be volunteering as well. The foundation has been wonderful!!!!
ettaetta33 4 years ago
My wife has Lupus 7 years ago and I think it is great to know that there are people out there trying to find a cure for Lupus and for that I deeply thanks all of them for the effort. I wish that a cure will soon be find as I have experience the life changing experiences since my wife is diagnose with Lupus. Thanks Again
andrysuzan 4 years ago
Thanks for informing us about Lupus! Sheila Shaw survived Lupus, which knocked out her kidney function. She teaches all about taking control of your life despite living with chronic illness. I have talked with so many Lupus patients who all said that their Lupus flared out at the most stressful point in their lives. This was Sheila's case as well. In my personal studies, it seems to be that keeping stress to a minimum would help with preventing it. You have a great foundation!
patientspride 4 years ago
Thanks for informing us about Lupus! Sheila Shaw survived Lupus, which knocked out her kidney function. She teaches all about taking control of your life despite living with chronic illness. I have talked with so many Lupus patients who all said that their Lupus flared out at the most stressful point in their lives. This was Sheila's case as well. In my personal studies, it seems to be that keeping stress to a minimum would help with preventing it. Great Foundation! Thank you for saving lives!
patientspride 4 years ago
i am lupus patient for 7 yrs ..suffered alot and i am male patient...
majnun98 4 years ago