I have IIH. The tablets I take are not working. The heaqdache is back, it feels like my head is going to explode, i never know what to expect. I wish I knew what to do!
i only found out i had IIH in oct 2010 i still have constant headaches although not as bad as they were without my medication i have lost some of my field of vision in my left eye the consultant i see is in birmingham and he specialises in IIH and all he keeps saying to me is keep taking the tablets and loose weight but thats easier said than done with the symptoms and the side effect from the tablets most of the time im sitting in a dark room or sleeping
I have had IH for over 21 years. As well as constant pains in the head I now have constant neck and back pain, as well as the other symptoms that come and go. On the internet I have found a research centre in America who are looking for a cure. We are all hoping for a cure.
Great news that this drug is getting a trial in the uk.
The reporter said that Charlotte is unusual for not responding to the standard treatment i believe that there are a lot more of us out there.Really hope we will get a chance to benefit from it too.
Whoa! What is the name of this drug?
halfacanadian 3 weeks ago
I have IIH. The tablets I take are not working. The heaqdache is back, it feels like my head is going to explode, i never know what to expect. I wish I knew what to do!
xHipHopQueeNx2010 9 months ago
i only found out i had IIH in oct 2010 i still have constant headaches although not as bad as they were without my medication i have lost some of my field of vision in my left eye the consultant i see is in birmingham and he specialises in IIH and all he keeps saying to me is keep taking the tablets and loose weight but thats easier said than done with the symptoms and the side effect from the tablets most of the time im sitting in a dark room or sleeping
joannegreathead 1 year ago
I have had IH for over 21 years. As well as constant pains in the head I now have constant neck and back pain, as well as the other symptoms that come and go. On the internet I have found a research centre in America who are looking for a cure. We are all hoping for a cure.
dejones63 1 year ago
i have iih would love someone to talk to , i am going blind i need help xx
wakeygurl 1 year ago
Has anyone else with IIH managed to get anywhere with their local PCT to trial the drug???
bossplaya563 1 year ago
Great news that this drug is getting a trial in the uk.
The reporter said that Charlotte is unusual for not responding to the standard treatment i believe that there are a lot more of us out there.Really hope we will get a chance to benefit from it too.
TAKETHE5TH 1 year ago