Our little boy Gideon's journey so far with Hypophosphatasia
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Uploaded by canadiancupcakechic on Apr 23, 2011
video created by family friend Jen Burgess.
our little boy was born with a rare bone disease called Hypophosphatasia, Gideon has the lethal form of the disease and we were told that he would not live without an experimental treatment in Winnipeg, MB. When he was born, he had almost no calcified bones in his skull, his ribs were the size of spaghetti and he had about 40 fractures throughout his body. His left femur was broken as well and was shaped like a boomerang; and he was missing other bones completely in his body. Over the past 6 months we have been in an experimental study in Winnipeg, MB and Gideons fractures have healed completely; his ribs have grown astronomically and he is now almost completely breathing on his own; he now has a skull and his femur has straightened out and wherever he was missing bones in his body, the bones have developed. Thank-you God!
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God Bless all of you, how absolutely amazing Our Lord is!! What a beautiful little boy!
ryleemuffin 3 weeks ago
im crying now
SkullChick1992 2 months ago
we just posted an updated video on gideon- Gideon our little warrior
MutilatedMetalMatt 2 months ago
Really amazing. It would be highly interesting to follow Gideon on Youtube and see how he develops over the next years. Perhaps you can post more videos over time?
hypophosphatasie 8 months ago
@thesittigs COOL
MutilatedMetalMatt 10 months ago
I'm in tears. What a wonderful tribute by your friend and I'm thrilled to hear about Gideon's progress. We are all praying for him and thinking of you - and I hope to meet you soon. You are wonderful parents and obviously have special friends and family. We are following your story in New Jersey.
thesittigs 10 months ago