informative speech
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4:11
The VHL Family Alliance: My Life with VHLby rennaisy3,272 views- 1:51
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I think this video was very informative for people who do not know of vhl. I too have this disease and was thankful to God that my surgeries have gone good when dealing with my spinal cord and kidney, the eye not so good but we had to try. I wish you the best and the only thing is to maybe add in there are rare cases like me when both parents do not have the gene at all and the child still gets the disease also known as a mutated gene. We need a cure.
Heather :)
bcgirl2007 2 years ago
Thanks lots for this video. This video helped me alot for my science paper on VHL. My cousin is currently dealing with brain surgery for this disease. Thanks again.
selbz 2 years ago
You've done worthwhile research about this disease and present it well in your speech here. You know far more about medical topics than most people your age. Have you considered continuing your studies and eventually going to medical school? If you can live with VHL, you can do anything.
snaefelle 2 years ago
I too have VHL and was blessed not to pass it on to my daughter. Your talk is very informative. VHL needs to be known to the world. You did a good job putting it on YouTube, and to the world. Thanks for helping to get the word out.
Sincerely,
Janice Infusino
MRNHRA 3 years ago