TEDxCambridge - Hugo Campos fights for the right to open his heart's data

Hugo Campos is a passionate advocate for the rights of patients to access their data and become empowered participants in their own health care. His $30,000 implantable cardiac defibrillator continually collects information about his body, yet he has no access to this valuable data. He is on a mission to change that.

http://www.tedxcambridge.com/thrive/hugo-campos/

http://icdusergroup.blogspot.com/

Category:

Science & Technology

Tags:

• TEDxCambridge
• Science
• Technology
• Medicine
• Health
• Heart
• Data
• Open Data
• Activism
• Hugo Campos
• Hypertrophic Cardiomyopathy
• Quantified Self
• HCM
• ICD
• medical devices
• patient data

[MrGillum14]

He speaks my words. As an HCM patient with an implantable ICD and bedside monitor I cringe and wonder when the modem calls the manufacturer and transmits my recent heart activity data.

[MatsO53]

This is a fantastic illustration of the journey towards the empowered patient. One day it also will be possible to say: It´s my data!

[AfternoonNapper]

This is a victory for all patients. I'm so glad to have met you at Medicine 2.0 and to continue to work with you for Stanford's Medicine X. You're a passionate advocate and amazing individual.