Leisa's life was cut short by a long battle with a rare brain disease known as "Dandy-Walker syndrome". She was a warm,intelligent, loving person whose time came too soon. When she died, not much was known about DWS. Today, with the perserverance of Eric Cole, Founder of the "Dandy-Walker Alliance", more knowledge and research of DWS will give hope of a brighter future for the many children and adults who are afflicted with this disease.
Should the airing of this video bring more awareness of DWS, Leisa will not have died in vain.
If you are looking for a good cause, check out the "Dandy Kids Documentary" website and donate for their film production!
Thanks,
Leisa's Mother
my names is ashley an m tg daughter is one N I found out when I was three months pregnant n now shes bout to b two in march n shes been really sick for a while now but she might have to have her second surgury real soon cuz she.has fluide n they fnt kno where it coming frm but its hard.for me n I dnt kno what id do with out her
kpeeler2002 4 months ago
So terribly sorry for your loss. I have a friend that is diagnosed with this in March of 2011 he is 25. Why is this happening now? Very confused about this syndrome.
luvs2nubs 9 months ago
I'm sorry for your loss. Leisa was a trooper. I can't believe she was almost 19 years of age when she died. Some people with that particular syndrome don't even make it to the age of 10.
cannonballsax 2 years ago
hi my daughter has been diagnosed with dws and severe heart defects. Everybody keeps giving me all the medical jargon, i just cant cope,how can i find out what treatments are out the what i can ask for? please help me.
ansarhuss 3 years ago
Thank you so much for watching..thank you.
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Dcox1951 3 years ago
Im so sorry for your loss....She was beautiful....And this video has served me to learn something new today. Thank you for making me aware of DWS.
ally101021 3 years ago