Tourettes syndrome: Joanna's story

Joanna was diagnosed with Tourettes syndrome in her 30s, although she has had ticks (repeated movements) all her life. She describes what effects different medications had on her and how she manages now without any.

Category:

News & Politics

Tags:

• Tourettes syndrome
• tourettes
• ticks
• Pete Bennett
• Big Brother's Pete
• health
• NHS
• NHS Choices

[ninja1018]

my friend with tourettes told me that getting stoned is the only thing that makes him not need to tick

[playbacon]

Kind of annoying? Try having it. You can't walk away and dismiss it.

[VintageVideo123]

I spell things out with my finger on everything. there are also times, when i make this, ING noise, and i hate it.

[Ihavetourettes13]

Omg

[hotchicky8]

I went on Clonadine for maybe a month and I actually ended up having a bad rash reaction all over my body... probably an alergic reaction... then I went on something else, can't remember the name of it.... and it did nothing even at the highest dose, so the doctors took a risk and put me on one of the last resort medications call Orap/Pimozide, which is an anti-psycotic. My Tics are pretty severe and I need to take 3 pills of Orap/Pimozide a day to keep them down, not gone, but not servere.

[ellimist6]

@ninja1018 I smoke cannabis as well to ease my tics. Cannabis is a wonderful safer medicine.

[JDfingerboards13]

do tic go on there own?

[krazycore]

wow i get this sometimes when I go to bed !!

sometimes I get ticks all night so I couldn't sleep at all !!

It really sucks.. wow heard about Tourettes syndrome but I actually didn't realize what it truely was until now.. Is it possible that I have this tourettes syndromes not all the time but sometimes?

[josephr910]

and i also stutter a tiny bit

[josephr910]

i think i have tourettes.i have a nose twitching problem ALOT and once in a blue moon my head just moves or twitches by my shoulder.that thing only happens like once in 3 months.Please someone tell me if I have Tourettes Syndrome

[HeavyMetalAndWhiskey]

@playbacon I have it myself, when I was younger it was really bad. As I got older it became more mild, enough that I was able to control it. I now only sometimes remember that I have it once in a while, like if a random thought pops up or I see on a show mentioning it.

I had the kind that give you impulses to do an action rather than it making you do the action. I feel the impulses if I think of it, but I am in full control of it, not many can though.

[keepitsimplestoopid]

@ninja1018 i have tourettes, and i agree.