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Post Pump Trial Thoughts

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Uploaded by on Jan 28, 2009

BR shares his thoughts after the Intrathecal Pump trial failed to control his neuropathy pain caused by MS

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Uploader Comments (sloneycho)

  • I live with constant, chronic pain, your videos have helped me so much. I wonder what medications have helped you most with your pain. I take a variety of medication but I cant increase because of the drowsiness and my need to drive to work. I am a single mom, so I continue to work in spite of my deteriorating physical condition which is very difficult at times. You and Steve have such positive attitudes and are so grateful. It helps me to remember to count my blessings. How are you doing?

  • @MsAriemae - The only thing that provided any relief was medicinal marijuana. For the opioids to be effective, the dosage had to be raised to a point where he lost his independence.

    Bobrobert passed away last year, and is no longer in pain.

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  • The pain nver goes away but mine is at a point where 70% of the time I can bear it. That's better than 100% of time in writhing pain.

  • Get the MedTonic pump, I can WALK !!!!! without the pump I can't. Even taking oral mades I'm using my stupid canes or a chair because the side-effects of the drugs, feeling "high". The pump is great !! No side effects and you only get it re-filled every 5 months !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!­!!!!!!!!!!!!!!!!!!!! No more pills !!! No more PILLS !!!

  • My trial didn't work eother, but after another year of oral meds I demanded the pump and it worked. The TRIAL is the problem, not the actual pump !!!!

  • I have been through decade of failed chronic pain interventions,I tried EVERYTHING, and ended up with a pain pump,which doesn't work. I got the pain very young there4 don't have a life. I'm looking for a partner, if you're in my position you'll know what I mean.

  • I am sorry it didn't work. I went through with it and i hope you find something that works.

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