Hunter Syndrome
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my son has MPS2 and my heart goes out to you he is on elaprase and it has helped him dramatically
livingwithmps2 1 year ago
@401thecat I agree with you. When you know what actually controls are society then you will understand that it has nothing to do with the progression of science but the control of it. The tears that fall because of this bluring my keyboard mean nothing. The big picture is always there—the money to be made from the population—his aliment means nothing to the ones that actually have control over this, unless their children were infected by it.
DreamPharaoh 1 year ago
That is inexcusable that he can't get the care he needs and deserves!
401thecat 1 year ago
honestly, i think he looks pretty cool haha. i hope he gets better though :T he's so young!
FishingtheSkyxd 1 year ago
this is just so sad!!!!
HDVLAD 1 year ago
If that had been my kid, we would have moved in a nanosecond. Hunter Syndrome is a very, very serious condition. And don't even get me started on Hurler Syndrome.
montanerfan10 1 year ago
Insurance companies and the Government are garbage. They preffer to let a human die before they pay for the treatment. Im guessing if you cant be a productive citizen for the government and make them some money then you shouldnt live.
Ratacon2004 1 year ago
@AGWDanimations No we don't! I was born in Dorset. Live here, trained here, 34 years a nurse and have been medically refused treatment for Lipoedema Disease. I'm on high dissability and mobility and pain killers, and told to basically treat myself! They have no funding. Help anyone?
Rayesi 1 year ago
We need to stop spending billions of dollars on wars and fund medical research.
Goddamnit mankind, you're letting me down.
O8SERVER 1 year ago
so you're saying it's not all right to give everyone treatment? are "illegals" not people?
UrInterweb 2 years ago