May 2008: Chronic Fatigue Syndrome Advisory Committee Testimony

what can i take for this.. i notice it too i think i might have that also.

Thank you so much for putting forth the enormous effort I know it did to go and present your case like this. Thank you for sharing your story.

Thank you so much for sharing your story. I am so very sorry that you will not be able to have children. I pray that God provides insight into a cure to the world of academia.

I have been waiting for this day! Thank you for speaking out and representing the young male CFS patients. You did a great job and I hope you have a better future in front of you as I wish for us all.

Thank you all for the words of encouragement; I really appreciate it. Please help to continue the fight for improved research, increased accountability, and overall reform. We all have a stake in this fight, and I believe that every individual who is affected by CFS has a duty to "give back", in whatever capacity they are physically capable of. Regardless of how big or small, every effort counts, and is necessary to garner change. Please join the CFIDS Association in this battle for reform.

Thanks for posting this. I am also an a young male, educated. I've dealt with this for years now relate to so much to what you're saying here. I've dealt with so much frustration - with insurance, clueless doctors, and unsympathetic employers. Wish you the best.

Thank you for sharing your experience on CFS on behalf of all the other sufferers out there whose lives have been halted by CFIDS. I recognize a lot of myself in your experience minus the health care support that you seem to have. So far, I have only seen my family doctor who doesn't have a clue what CFIDS entails. Still waiting to have an appointment date and time after the request was faxes 3 months ago- with a rheumatologist.. Good luck with your health!

Good job!  That must have been very
stressful for you. Thank you very much.
Yes, we need a "young, male face to
CFS".

thanks for testifying. I can so relate to your story . I was a great highschool athlete looking at colleges when I came down with a Mono that never left me. I mudled through college in 6 years but trying to exhist in the real world has been a hell. The horrible treatment from doctors, the loss of friends and experiences and the government does paltry little to save us from this hell. If we were only well enough to protest on the street they would see how big a problem this disease is. Thanks!

This is a nasty condition I went through absolute hell in the beginning and still have it after 5 yrs but you know what:

Lots of people who have CFS have such a negative perspective on life. I actually avoid other people with CFS because of this.

People need to ditch the victim mentality accept what has happened as part of life and create a different but also better life. My life is a million times better now then pre CFS. I wouldn't change anything, it was a gift!