Giovanna linda MINHA PRINCESINHA (TAY-SACHS)

my name is Iolanda has 25 ans of age is married and my husband and I am consaguinios (prime of first degree) I have a son of 2 years who if always calls Giovanna it was m drinks pretty until the 6 months of life miha son was one drinks normal the days more had been passing and I perceived that the Giovanna more was atrazada than the others you drink said pediatra me that the Giovanna was a girl very gordinha therefore had more difficulties that the other children, more when it made 9 months of life perceived that she was losing the motoros movements and we take a doctor infantile neurologist it said that was normal that each child has its especifio time to develop itself more exactly thus we start to make sessions of neuropsico-motor fisioterapias more the days went passing and we do not viamos no improvement in our son already with one we nestle and 3 not firmavmais months the Giovanna the neck and I was very worried therefore I perceived that the Giovanna was very different of the children of its age took then it in a hospital very known here in Brazil that possue the best doctors neurologist of the country and the doctor after a oftalmologista examination evidenced that mine Giovanna son had a spot red cherry in its eyes, I wise person oque this did not mean found that mine son had something that it could be reverted, said me to the doctor that it would have a metabolic illness more did not say which to me was when we made blood tests and day 28 of March of 2008 was evidenced that my son to who I in such a way love I would have an illness called TAY-SACHS I to the wise person nothing this cursed illness more pesquizando in the Internet I perceive that the incurable illness ´pe the doctors had also said me that the espectativa of life of mine son does not pass of 5 years of age I is despaired looking to aid in tods the places here in Brazil quaze not if hears to speak of children that they have had TAY-SACHS does not have none institution or association that in I to them really help with some type of support I am devoid of aid. it would like to inform more to me regarding the tay-Sachs illness and oque I can make so that my son does not die helps is despaired would also like me to register in cadastre me in NTDSA CURETAY-SACHS ASSOSIAÇÃO as makes? please it answers, I am despaired help me to . Iolanda Abreu

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[isadora438]

que deus a abençoe.

[Abuilder2]

My Name I Giovanna To :)

[wagner1216]

linda princesinha um anjo na vida de voces que deus d muita saude para ela fuiiiiiiiiiiiiii feliz 2011

[taayy5]

qi linda amei S2

[miami383]

May God bless you all.

[raerae1985]

que linda princesa :) Good job.

[jazzster54321]

im still not sure what tay sachs is some of the kids on other videos looked like they just had down syndrome(not being mean or funny) is it just when the eyes spread apart?

[fwest12]

Deus abençoe vcs!

[SeLeNaGoMeZ568]

Giovanna is my name=)

[zayogi]

linda vida minha!