Hypermobility (possible) Ehlers-Danlos Syndrome & Fibromyagia - November 23, 2009

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Uploaded by on Nov 30, 2009

A video I made on November 23, 2009 about my Hypermobility Syndrome (possible Hypermobility Ehlers-Danlos Syndrome) and my Fibromyalgia pain. I discuss hydrotherapy (also known as water therapy), visiting the geneticist in December, and warn about flu shots. Please read my blog at http://ladyoftheozarks.blogspot.com/ where I discuss living with chronic pain on a daily basis.

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  • Flu shot- haven't gotton it in a couple yrs and haven't gotton the flu either :P Might consider either the mercury or the animal products might cause the flare-ups. I didn't get "water therapy", I got pt w/ a pool pass to the club in which the PT is located. She gave me some exercises but the pass expired before I got a chance to use it all. I used to be a swimmer so I thought maybe an easy breast stroke... ooow!!! 1 stroke pushed my knee to the side and hurt like heck...

  • I have a free membership to the YMCA. I'm so scared to go to the pool (falling fear). I know it would be so great for me. My pt went with me to show me some exercises, so I know what to do and what not to do. Uggh, so frustrating to not go. Good for you on the water therapy. I love it and it helps so much!!!!!!

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