myalgic encephalomyelitis and sleep

sleeping with ME/CFS

Category:

People & Blogs

Tags:

• myalgic
• encephalomyelitis
• chronic
• fatigue
• syndrome
• sleep
• blog
• vlog
• me/cfs
• cfs/me
• Sleeping

[hi771lrt]

I have lucid dreams too. For years and years I'd sleep and have these looooong fun, fascintating dreams with complicated storylines and sometimes thriller-movie like plots. (Even though I know it is not good, as is a sign of poor sleep, my daily life was so monotonous with M.E./C.F.S. that I was grateful for stilmulation! lol!) It was a *good* idea to focus on one topic at a time btw!! It's a daunting thing, as a topic, this M.E. I was just thinking about you the other day. Thx for video! :-)

[Dcebes]

@hi771lrt yeah my dreams are more intense and interesting now than before. sometimes unpleasant but interesting none the less

[MultiYesindeed]

Good points - thanks. Generally people think cfs = sleep a lot of the time. I have the insomnia. Have tried to tackle it by my own means and have streadfastly refused drugs being an ex-athlete it's just my way of trying to deal with the beast. I'm glad you raised this in your video because I find it one of THE most frustrating aspects of the condition - poor sleep... feel crap.. reasonable sleep.. feel crap.. good sleep (v. rare).. still feel crap. Thanks & good wishes to all tuning in

[Dcebes]

@MultiYesindeed i think no drugs and better than taking drugs were possible, but sometimes circumstances can call for a pharmaceutical intervention. all things in moderation.

[Dcebes]

@MultiYesindeed err butchered my response what i meant to say....i think no drugs are better than taking drugs where possible............

[hi771lrt]

@Dcebes Ok, not just me then with 'intense and interestig dreams' That is interesting to know. ;-)

[ironbith]

I fight all day to stay awake & then when it's bedtime I can't sleep! I have to take sleep meds almost every night and they were not made to be taken every night. So frustrating!

[Dcebes]

@ChronicFatigueSyn i hope you take a reduced course load it would be a shame to set back your progress through overexertion

[Dcebes]

@ChronicFatigueSyn right now after missing 4 semesters im taking 1 course down the the usual 5. if that goes well after doing that for a bit i might take 2/5 haha, im trying to play the tortoise. right now im on citalopram and gabapentin. and i take small doeses of lozazepam sometimes. i was on zoloft but switched because zoloft was way too hard on my stomach (heartburn, nausea). what about you, doing any school?

[Dcebes]

@ChronicFatigueSyn vaccines put a stress on the body, and i think any stress on the body can trigger ME. but no i dont think vaccines played a different role than all i the stressors that were placed on my body at the time. 

[hi771lrt]

It should not be our responsibility to create a medically valid sounding vocabulary while being treated by *Doctors* as if its 'all in our head'.

Sorry dude. Vent 0ver. XO

Claustrophobia.........also worsened by waking up and knowing your doctors doesn't realise you feel this bad when you wake up. :-)

[hi771lrt]

So, M.E./C.F.S is: 1. Difficult to describe by the patient! (brain-fog & terms lacking from medical ppl related)

2.Hard to Ariculate.

3.People around you don't 'GET IT'.

They don't 'Get It' because they can't *feel* it, and also we are so fogged it is hard to communicate these things on demand, and there is a lack in vocabulary available to us to describe M.E./C.F.S..,.And that IS *worsened* by the fact that the name C.F.S. is,....are idiotically misleading word.