Transverse Myelitis, my Journey.

Raising awareness of Transverse Myelitis, a rare illness that destroys the myelin sheath that protects spinal nerves.
For more info: http://www.codysfirststep.org/

http://www.hopkinsneuro.org/tm/

Category:

People & Blogs

Tags:

• transverse
• myelitis
• photo2010
• rare
• disease
• myelin
• nerve
• damage
• spinal
• cord

[7Nubi]

Thank you for sharing. My cousin was just diagnosed.

[photo2010]

@7Nubi You're welcome. Best wishes to your cousin for recovery.

[antiquesman2606]

how do you manage with mobility?..i have TM..i want a mobility scooter but alas it will be a whie yet.

[photo2010]

I did get a powerchair but haven't used it much. I am too fatigued from TM to do anything lately.

[antiquesman2606]

do you still drive ? have you got a mobility scooter ?

[photo2010]

@antiquesman2606 Can't drive right now. yes I have two powerchairs. One for indoors, one to go out.

[MrJoesouth]

I had TM and feel fortunate to have recovered apparently well but was left with urological nuisasance, but for the pain maybe you could try Mariguana, I live in a Mexico so to have been diagnosed quick was miraculus but when the damage is done well only your body knows, thanks for your story

[cherilovinherlife]

i took me 2 years to get my diagnose,i cannot bend my toes on my left foot,or feel my foot,most of my leg i can't feel.my right leg is week and,have bladder issues, the pain was enough i thought about suicide,now im on a series of pills and fentynal patch,im 47, i just started reading everything aand anything i can. one dr.said"you'll never run after your grandkids". gee thanks asshole,i know your pain, i was in the hospital a month , your in my prayers

[osurocks10]

Hello Sir, Thanks for this video blog. I admire your courage to have lived with TM for 20 odd years. One of my close family member has been diagnosed with TM.He is paralyzed chest down.We do not know if he'll be able to walk ever.Please let us know if you've seen Dr.Kerr from John Hopkins. Would like to know more about the treatment JH has to offer.

[davidlaw28]

I developed sensory TM in 2003. I recovered in 2007! I was lucky!

[jeremylm87]

i have TM also i was diagnosed when i was 14 from my neck down, now i compete in Jiujitsu competitions look at my videos (jeremy Montalvo) i started wrestling when i was 17 i have poor balance and cant feel my right foot keep ur head up

[pedropratez]

I'm from Portugal and about 2 years ago i have TM too.thankfully i'm fully recovered now.

do you now there are cases of recurrense of TM?

WISH YOU BEST

[antiquesman2606]

sorry your fatigued..i get it also but people don't really get it..i think alot of the time people think its laziness.