Autoimmune Diseases - Multiple ! Sjogrens Syndrome Isaacs Syndrome

Living with Multiple Autoimmune Diseases...the cause the effects. My Story..Clinical significance of being HLA-B27+ .
http://www.emedicine.com/oph/topic721.htm
http://isaacsyndrome.proboards.com
http://isaacs-syndrome.com
And Sjogrens Website
http://sjogrensinaustralia.20m.com

Category:

Education

Tags:

• health
• Neuromyotonia
• Multiple
• Autoimmune
• Disease
• isaacs
• syndrome
• twitching

[lovelyelefant]

Hi I am a 33 year old woman who has been sick with autoimmune since I was 9. I do not know my genitic marker because my docs have yet to do those test. I have sjogren's, LPUS, and fibromyalga. So far anyway!! I am having a problem with my thiroid but the docs say not to worry about it!! I am tired all the time!! All that we can do is get the word out!! And I am trying!! I had my doc tell me the other day that autoimmune is mind over matter!! I would like to see them try living with this!!!

[quasarhi]

@lovelyelefant Thanks for your reply..Yes living with it is the only way to truly appreciate how tough it is..!

There are Docs that also have Autoimmune Disease..sometimes in Research..Im sure they will be very motiviated to push the answers along...but for now until the answers come..we have to make the best of it

Hope your health settles down for the better ...have a good xmas 2011

[brennosation]

hi i'm 47 male i am australian i have just been told i have sicca syndrome after having tests done ,its been a long frustrating time, i really don't understand auto immune ,i have really only noticed the symptons for month, but the doc said you only vnotice after things get out of your comfort zone,and after watching your vid i have had stomach issues for years as well, i have to go and see a dietician ,i don't understand how this all ties in

[quasarhi]

@brennosation

Hi Fellow Aussie !

Yes I remember my eyes beginning to feel gritty...and the wind would hurt the eyes...the onset is insidious.

The stomach connection appears to be immune issues as well.

If you want to talk some more about this stuff feel free to send us a PM.

[anniebella10]

Hey!! My names Annie. i was recently diagnosed with Sjogrens Syndrome. I would like to talk some more..do you have FB or something like that =)

[quasarhi]

@anniebella10

Hi anniebella

Apologies for taking so long to reply...I somehow missed your comment.

I dont do FB sorry..but happy to chat via email or other ways...send me a message if so.

Take care

[asiachloe]

Thank you for sharing your story. I am a nursing student in the U.S. & this story was very helpful.

[quasarhi]

@goofygirly2010 Hi goofy

Yeah HLAB27 is a baddie..seems to be associated with multiple Autoimmune Disease...as it is with Arthritis....my take on it is that it is generally making our bodies less self tolerant to its own immune system.

I started with one AI now several....we need to hope scientists can one day understand the immune system...Perhaps they will find a way to correct the HLAB27 gene...yet I dont think we will benefit maybe our children...still we hope that breakthroughs come to us.