Living with Multiple Sclerosis - 2010 Patient Advocate Conference

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• Living
• with
• Multiple
• Sclerosis
• 2010
• Patient
• Advocate
• Conference

[dolbfadofhadpf]

Hi First of all I think you're a wonderful person and it's great you're making this videos about MS. I been having my muscles of my leg trembling a little, like involuntarly but just a few times a day and my MRI had scars, but six neurologists I visited told me I didn't have it, because I didn't have symptoms and it could have been scars of a disease my mother had while pregnat (she had an eruptive), but this was a few weeks before I started having the little tremblings. What should I do?

[laurenvparrott]

@dolbfadofhadpf Hello! Thank you so much! Oh goodness...have you had a spinal tap? Usually an MRI and a spinal tap will give you a definite diagnosis. That's all I can think of, because you saw SIX neurologists? Wow. I would also make sure to see an MS specialist because they will know the most about the disease. I wish you the very best! Please keep in touch!

[flore20ani]

I am so glad to see you're doing so well, I've seen a few minutes ago a video when you were in hospital and I am so glad to see that now you are well. You gave me hope, 8 months ago I started my cure with tysabri after numerous consecutive relapsesand even if I'm not very well I feel the diffrence. You make me hope that someday I'll be again able to do everything I want and feel good. Thank you and good luck!

[laurenvparrott]

@flore20ani Thank you so much!! I'm so glad that Tysabri has helped you! I'm sure you'll be able to do the things that make you feel good again! Stay positive and keep the faith! I wish you the best!

[b1blancer1]

Lauren - I don't have MS, but I know some folks that do. For 15 years now, I've ridden in the MS-150 Bike Tour. By my reckoning, that 2,250 miles I've cycled to help find a cure for MS. I can tell you that me and my fellow riders are acutely aware of what you and people like you have to go through day in and day out. And believe me when I say you are our inspiration to keep pedaling through the miles in the heat, cold, wind, and occasional unexpected rain. God Bless you!!

[laurenvparrott]

@b1blancer1 Wow, oh my gosh - thank you so much for riding for MS for 15 years!! That means so much to us patients!! I really appreciate you writing to me, and thank you for everything you do!! God Bless you!!

[kezzcass]

When friends get PML that is not hearsay, I am surprised to hear you say that. I am sure there are people who are very genuine at Biogen Idec.. this is not really the point. I have stopped taking Tysabri this month. I don't think the company is there for me, in fact the stock exchange are given more information than I am - that's my experience. Those who are truly looking for the cure of MS are the ones who get my vote. I wish the very best for you Lauren.

[missalgernon]

I'm sure there are some individuals that care about patients, that's why they are employed to convince patient advocates that such a dangerous drug is okay. But in the end, the stocks and profit margins rule. Did you ask the CEO How big his yacht is ;-) MS is big business, with people having to rely on very expensive drugs for many many years. I'd like to hear more about any safer therapies they're working on? Or ways they are trying to mitigate the risks or side effects?

[RODEMOM77]

Thanks Lauren.

[ProtandimAntiAging]

I also have a friend who has had MS for years. Recently, she started using our Protandim product and I can't wait to see the results.

Dr. Perlmutter has been helping people with Parkinson's using glutithione as it helps with oxidative stress. Look up MS and oxidative stress on w w w (dot) pubmed (dot) gov. Oxidative stress is connected to MS. While at that site, look up Protandim and see how it works on cancer, heart failure and MD. All natural too with no side effects. Good luck to all! :")

[laurenvparrott]

@bethanystiles Love you too! I'm doing great! I hope you are too!