My Somewhat Lethal Diagnosis

I've gotten the results of my biopsies and have to cope with what I've heard.

Category:

People & Blogs

Tags:

• mediaman5005
• vlog
• somewhat
• lethal
• diagnosis
• Crohn's
• Diease
• medication
• asacol
• budesonide
• entocort
• prevacid

[RCronier]

Hi friend, I have had crohns since 1995. I am now 39 years old. My doctor and I both hate Prednisone so he just started me on Entorcort. You are right about all the medicines. I was on Pentasa for a year and had to take 16 capsules a day. I have had to small bowel resections and had an ostomy bag for a year. I am also on Cimzia which is a once a month injection. It is still too early to tell, but this medicine has put a lot of people in remission. Best of luck to you and just stay positive. RC

[mediaman5005]

@RCronier Thank you for your well wishes. I hope the best for you with your cimzia treatment.

[SadieDee1]

I just wanted to thank you for posting this, I have just been diagnosed with Crohn's Disease and was feeling pretty hopeless. All the other videos on here related to CD were so depressing and scary. This really gave me a new outlook. I am just starting Asacol as well. Thanks again! p.s. you'd make a great actor, you have a really interesting voice.

[mediaman5005]

@SadieDee1 Thanks SadieDee. Being diagnosed with Crohn's isn't the greatest thing but the Asacol should help with your inflammation, especially if you've had really bad symptoms. I plan to talk about my personal experience with crohn's in another video soon, so stay tuned to my channel for that. I wish you the best of luck with your battle with crohn's.

[missingpumpkins]

i would just like to say that i was also diagnosed with crohns when i was in school just like you in 2006. i am so sorry to hear about your diagnosis for it's a difficult disease to deal with. it's so fickle and you never know when it's going to attack. i was also prescribed asacol, but it didn't work. now i'm on 500mg of pentasa - 9 a day. it's a lot to keep up with but it pays off in the end. it's good to stay positive because it can certainly get you down. <3

[mediaman5005]

Thanks for the advice missingpumpkins :-)

One thing I noticed about Crohn's Diease medications is that they come with a lot of the side effects that you may already get from Crohn's..isn't that ironic? It's almost like taking a pill that will give you Crohn's

[SadieDee1]

I just wanted to thank you for posting this, I have just been diagnosed with Crohn's Disease and was feeling pretty hopeless. All the other videos on here related to CD were so depressing and scary. This really gave me a new outlook. I am just starting Asacol as well. Thanks again! p.s. you'd make a great actor, you have a really interesting voice.

[mediaman5005]

Thank you for watching. How have you been holding up since last year?

I briefly mentioned it again in another video of mine called "My Halloweenz Costume" where I mention something for all Crohn's patients to look into. Check it out if when you get the chance.

[Whatsheisthinking]

Excellent video on Crohns. So relatable. I almost feel like your telling my story. I've been DX sinced 9/08.

[tomf108]

I'm sure you can keep it under control. Just wanted to let you know tht I wish you well.