The Realities of ME/CFS
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Uploaded by fogggygyrl on Feb 6, 2008
The facts about ME/CFS in this video were taken from many different ME/CFS organizations that are on the Web. ME/CFS can range from mild to severe in patients. It is estimated that 25% of ME/CFS patients suffer from a severe form of the illness and are completely disabled by it. This is a physical illness and is not psychological.
Associations and Foundations: The Natl. CFIDS Foundation, The DANA Foundation, The Wisconsin CFS Assoc. Inc ME International, Co-Cure.org, The ME Assoc.
Copyright Nov. 3, 2010
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Uploader Comments (fogggygyrl)
Top Comments
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in my land germany the doctors are so fuckin stupid about this terrible sick cfs.
its a shame.people like me ,who have cfs
must fight alone.
2 years ago 10
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Given the possibility...no...probability
...that this has been used as, for many people, a dustbin diagnosis by the medical profession, the only treatment available to me from my GP is psychiatric. Given that I have a document from a psychiatrist stating that I have a clean bill of mental health, where are the other treatments? It's not necessarily a case of having a "strategy" because there are no other options available. 2 years ago 10
All Comments (87)
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I became sick in 1989 and was told I had Mononeucleosis (again) ,but was not diagnosed with CFS until 1990. I am 60 now, and heard of this "Synthetic" XMRV virus that was made in the 80s, and accidently got out... Luckily my doctor told me NEVER to donate blood. But how many have >>?? Who knows. My life ended when I was 38, I just didnt die. :-(
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Watching this video made me realize that my "feeling horrible" the past 4 weeks are just another sympton of the fibromyalgia I have had for 15 years. It's nice that someone can empathize and not say, "But you look just fine".
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very moving video and sums it up perfectly
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Life with CFS is a never ending bloody story that never lets up. I am 22 I have had M.E for 1 year now my life is ruined I can't even get a job if I go for a 15 minute walk I end up in bed for days to recover. I get people telling me to harden up I get people who say it is all in my head, I get people who say I just have depression, NEVER ENDING FUCKING STORY!!!!!!!!! I may as well dig myself a grave now and be done with this!!!!
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I'm having this painful disease for years..I had it when I got 15...Now I'm 17and I still have it. It took away all my friends, my school career and my childhood. I would do anything to cure this awfui, dreadful disease. No human being should have to go through this hell...
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If you are at a diagnostic end I think you whoever you are owe it to yourself to look into medical cannabis. It melted my CFS away in seconds. I cried.
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This has been a very bad week with CFS/FM for me. This video expressed my feelings so well. Sometimes we just don't want to keep on fighting, but we must.
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fogggy..thanks for the "pending approval " very soothing for my nerves !
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ME and CFS are not the same - ME is a neurological disease - tho many of the signs and the symptoms do appear to be the same - the sad thing is so many doctors don't care to find out more about these illnesses
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To All: I will always monitor comments for my videos. I think it's a responsible thing to do considering the kinds of comments some people make at times especially when the video is about a controversial subject which happens to attract a lot of spam as well.
fogggygyrl 1 year ago
ME is Myalgic Encephalomyelitis, that's the name for CFS in the UK and Australia and Canada, New Zealand too.
fogggygyrl 2 years ago
Also, SolidScore-- try googling for "How would my doctor know if I have CFS?"
fogggygyrl 2 years ago
Solidscore-- google for butyoudontlooksick and click on the message board. See if you think you have similar symptoms as the kids there that have CFS or other illnesses. Let your parents know if you do. Let me know if you need more help.
fogggygyrl 2 years ago
I understand how you feel Multi. It's horrible dealing with this day in and day out.
fogggygyrl 2 years ago
We have hope today!! Thank you Researchers from the Whittemore Peterson Institute (WPI), located at the University of Nevada, Reno, the National Cancer Institute (NCI), part of the National Institutes of Health, and the Cleveland Clinic. :)
fogggygyrl 2 years ago