Ketogenic Diet for seizures

Video of our journey over the last 12 months, coming full circle back to the Ketogenic Diet to control Heather Rileys uncontrolled seizures.

Category:

Education

Tags:

• Seizure
• epilepsy
• ketogenic diet
• developmental delay

[luminitano1]

hi

my 10 years old daughter has a rare epilepsy syndrom ESES- electrical state during epilepticus sleep and LKS Landau- Kleffner syndrome.

Dana began keto diet with MCT oil on 23th february 2009 and i see improvements.

at 6th april after EEG during sleep the ESES dissapeared!!!

NO ESES!

i wanted to ask you how is Heather now?

Wish you strenght to carry on the wonderfull job that you do with her. Dana's mom.

[Denae1977]

Thats wonderful news about your daughter. Heather Riley is doing a little better after a very rough fall/winter. She is taking Felbatol and 3 other anti seizure medications. We hope to be able to reduce some of the medications.

[pamelamadindong]

You should get her tested for Celiac commonly associated with Myoclonic seizures. I have them as well. I would get thousands a day. They are a symptom of an autoimmune disorder. Mine are controled now by going on a gluten free diet, completely med free. I only had 2 today, a small flare up, but have gone a few months without any thanks to a strict wheat free diet. Worth looking into, it is s simple blood test. Search Celiac & myclonic, find a celiac specialist in your area & get her tested.

[Denae1977]

She was tested several years ago for celiac and went on a gluten free diet for a very long time ( I think about 18 months) we didn't see any difference. Our geneticist actually gave us lots of info about this. Thank you for sharing!

[MrCnbwoodard]

My son has been having seizures (ESES / LKS) since 2005. He has been on the keto diet for 5 years. At first I felt like the miracle worker trying to teach Helen Keller to eat with a fork (you can look up the clip on YouTube). Of course just like you we had reached the end, and realized that if we didn’t keep it up that we would probability lose him to status epilepticus. Thank God we at least saw fewer seizures in the first month.

Chris

[mariahemmett]

My daughter is starting this diet in the next few weeks... i am nervous and excited.. I am praying that this works.. so far nothing else has..

[ZZZZAS]

God Bless You Heather...you're very special and God can do miracles....

[jlucien75]

continued: i feel that our bella, much like heather, will choose not to eat and she too will have to end up getting a "button". it's been a year since your video. i hope heather is well. i really do. will pray for her. i struggle with our daughter's epilepsy and was wondering how you cope? does heather go to school?how do you manage that? does she fatigue from her seizures?

[jlucien75]

hello, this is my first time posting to youtube and the story of your daughter heather riley has touched my heart. we are a family struggling with a little girl, bella, now 7 who is also suffering from seizures. we are at the point now that it just seems like the meds are not working. our dr. has mentioned the ketogenic diet. i keep hearing how hard it is. i get the overall point...high fat-low carbs, but could you please tell me what is it about this diet that makes it so terribly painful.

[anotheraoluser]

I feel your pain..so beautifully explained...

I am a nurse to such a child...

[LI4E1]

my respects. My sister and I tried this years back. It is not eassy at all.

[kingty9313]

i want a bottle........................­....

[mnat28]

My niece also has epilepsy -had her first seizure at 5 mos-and was worse from there. They were pretty bad and meds werent working @ all. When she was about 1 she was put on the Ketogenic diet-and evne though it was hard to manage at the beginning-and still is at time-her quality of life has increased drastically!! Before the diet she was like a newborn, not sitting unsupported, not even walking!-Now at 4.5 she's able to walk and almost run! (she also has mitochondrial disorder-low muscle tone)