Ben (My Story So Far...)

Hi, I was born with Hypoplastic Left Heart Syndrome. This is my story so far...

Category:

People & Blogs

Tags:

• Hypoplastic
• Left
• Heart
• Syndrome
• Congenital
• Defects
• Problems

[bensmum2008]

hi everyone, just to let you know that Ben is still with us and doing very well. I will put another video on here soon I promise, it's just having the time!!! xx

[bensmum2008]

Thank you everyone and talhateen101, i am so sorry for your loss (((((hugs)))) xxxxxx

[bensmum2008]

Thanks for all the comments. Ben is still doing well. He has recently turned 1 (a huge milestone!)I will post some more video compilations on here soon, just struggle to find the time x

[bensmum2008]

I'm so glad! That is what I wanted (to give hope to at least one person in the same situation). Hope all is ok.

We now have a camcorder so I will be uploading some videos we have recently made of Ben as to an update.

Ben's mum xx

[pikypan]

I have seen this video like 30 times, my baby has HLHS and the same thing happened to him (infection), and he is a month of age and we still in the hospital, we're going to be here for another month. This video give me hope every time i'm sad!!

[paiger11910]

i feel so bad :(

[jjac31456287]

aww precious lil guy i hope he is well now.

[209esperanza]

i can only cry cry if i see this my son had 5 operations iam so lucky his still in my life glad ben made it too wish you alll the luck and happiness

[birds16ful]

I have a friend with the name is Ben Schlecht & I think he has Asperger Syndrome.

[Padrobus]

Thank you PriceDeity. How old are you?! Ben is doing well thanks x

[PrinceDeity]

I hope Ben get through the surgeries. And if it makes you feel any better, I got through all the surgeries just fine.

Oh, and a little thing you may want to know, his hands, feet, and lips may randomly turn purple at times, but it;s alright (this mostly happens when I get cold)

[MarleneSB]

Our little grandson Max was exactly the same and he has his third procedure this year. On Saturday he will be 4 years old - a miracle when we look back and what a joy he has been to all of us. Each day is so precious and have you noticed that when our special children smile, they light up a room?

[somer360]

my daughter has HRHS and they told us she wouldn't make it to her second birthday but she is now four years old and staying strong. so, hang in there ben, miracles happen!