About Lupus and Living with Lupus

I received several email requests asking me to do a video telling about Lupus and what it's like to live with the disease. I'll do my best as it's hard since no two lupus patients are the same. I hope this helps others with the disease but also, those around them to better understand what it's like to have this disease. Also, Please check out my friend JAX powerful video that EVERY woman should see. Here's the link:

http://www.youtube.com/watch?v=tktjAIZRiXw&feature=related

Lupus Foundation of America: Lupus.org
cure for Lupus: Cure4Lupus.org
Lupus Alliance for Research: http://www.lupusalliance.org/research.asp

The percentage of Discoid lupus evolving into SLE lupus is between 8 and 10%. Here are some links for more information on Discoid lupus.

http://www.wellsphere.com/wellpage/sle-discoid

http://www.lupus.org/webmodules/webarticlesnet/?z=76&a=467
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Thank you for learning about Lupus and for helping to spread Awareness!

Category:

News & Politics

Tags:

• Lupus
• SLE
• SLE Lupus
• lupus symptoms
• symptoms
• lupus treatment
• living with lupus
• lupus disease
• skin
• sun
• allegic to sun
• sun allergy
• hair loss
• hair
• skin rash
• Micahel Jackson Lupus
• Jackson lupus
• MJ Lupus
• discoid lupus
• discoid
• malar rash
• rheumy
• rhuematology
• arthritis
• joint pain
• joint inflammation
• ctd
• autoimmune
• autoimmune disease
• autoimmun symptoms
• treatment options
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[belladiana09]

i have lupus a couple of months ago i started to have joint pain. at first dey said it was drug induced and i beilive and pray dat it is. acne medicine induced my lupus becuase no one in my family has this. im scared but im hopeful im on steroids and i think the drugs demselves are making me go insane. i was perfecttly healthy before never missed a pieriod never even gotten sick. am i going to continue to get more symtoms like liver heart lung problems?

[Michellemlm]

I'm sorry about your diagnosis... Try not to be scared... easier said than done, I know but stress can bring on symptoms. It's hard to say how things will go.. Lupus is very unpredictable and no two patients are alike as far as symptoms go.. some people live long and have mild lupus, some go back and forth and others get organ involvement, etc... The best things to do is to stay away from the florescent lights and the sun and live as healthy as possible so you'll be as healthy as possible.

[LaughsatVideos]

Doctor told me in ER its time for pain management and thats all they could do, I do feel better and do much more but I just never like to have to take them Its been only three months I try not to take to much Im afaid they will cover up to much symptoms and I wouldnt reconize when I need antibitics, Usually once a month or then sometimes not for months,

[LaughsatVideos]

I couldnt have said all that you've said better than that, thanks...

[LaughsatVideos]

Celebrax and Morphine now ER visits are still the same every month or so, Ct scans show swollen abdomen and uterus, so gonna have that out soon, but other than that I have a great life with great kids and a great hubby, they all know have to let my meds kick in before I get outta bed other wize have a hard time and the side affects are dizzyness, My house is always full of love and happyness, Some good days and some bad days, they just ask good day today or bad,, think they finnaly accept it..

[LaughsatVideos]

then he continued to look at all my records and said I had all the symptoms and blood counts were always so low.. now that was a start of everything,, I had an ablation to stop my periods to help with blood counts, was put on steriods blowed me right up, so I stopped those, Hate the summer as soon as I walked outside in the sun I could almost faint But loved the cloudy rainy day for gardening in the mud, and now its 2012 and hands are so swollen all the time and hips are grinding, pain managemt

[LaughsatVideos]

Great Video, finally I was told I had Lupus in 2008 after years and years of illnesses, low blood counts so low doc said he couldnt understand how I could make it to his office, oh the swollen lymps in my neck throat were so bad they almost traicked me in hospital in 04 still no diagnosis,, Thank ears nose and throat doctor took on look at the sores on my skin arm and said do you get those often, I said all over and he looked at couple more and the scaring and said YOU HAVE LUPUS!

[remedyfarm]

Correction - I don't know if it was Lupus for about 10 years. I was diagnosed with fibro a few years before the Lupus diagnosis. Just wanna be more accurate... Lol. Take lots of omega 3's, vitamin D, and magnesium with malic acid helps.... Of course Plaquinel was Very helpful for me. Stress makes things much worse and I hope those of you who also have Lupus learn to avoid it like the sun. Take care, my thoughts are with you.

[remedyfarm]

I was bed ridden for three years. First rheumatologist said I didn't have Lupus because my ANA was negative. Second rheumatologist did more extensive tests and diagnosed Lupus. I had bad symptoms for about 10 years before my diagnosis. It's so good that you've done this video as there must be so many others who suffer for lack of knowledge. This video will go on one of my playlists on my channel. Thank you so much for putting it up. It will help me go forward with a charity I'm starting. Thank

[BBtammi]

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[julieannemichelle]

thank you for educating those of us who really don't know about lupus. you are truly a wonderful educator. i wish you the best. take care.

[tbyrd776]

Its like noone understands the tiredness its just so sad how they try to put it on the back burner. I have had sle since 2007. I had seizures...memory loss and all other things been on the steriods forever.