Albinism

A twelve-year-old boy with albinism, born from two nonaffected carriers answers questions about albinism.

Category:

Education

Tags:

• Dagur Kári
• noi
• Kristmundsson
• Tómas Lemarquis
• Edgar Winter
• albino
• albinism
• albinoism
• white
• fair
• blind
• low vision
• teen
• interview
• educational
• Braille
• genetics
• carrier
• recessive
• Hermansky Pudlak
• iowa
• sight saving
• school
• prognosis
• support

[lilredhood27]

the eyes need pigment to see properly and with out it the eye can not function properly.Albinos have no pigment and that is why his eyes are effected.The eyes can not handle bright light or light for that matter with out pigment.

[rattypajamas]

@lilredhood27, Very good. You are correct and know about albinism. Do you know somebody who has it?

[xFreakshowDreams]

Isn't the condition where his eyes move back and forth called nystagmus? Like... because of the lack of pigment they have to... quiver, if you will-- to relay the image so it's viewable?

I read an article about it, but not everyone with albinism HAS nystagmus. Just usually the "quivering" is because of it.

[rattypajamas]

@xFreakshowDreams, Yes. You are correct.

[precisethoughts]

is he really black?

[rattypajamas]

@precisethoughts, no, he is white, but he has albinism so he doesn't see so well.

[weechavy]

I honestley didnt even know he had albinism he just looks like a white guy like me.

[lionheartodd]

he looks like a white person to me

[ZarabethS179]

I did a huge paper on albinism several years ago in grad school. I met a few kids with it at our local school for the visually impaired. Just normal kids, really. Can't seat them next to the window. Other than that, they're really like any other kid with visual problems.

[MissAshleyJClark]

Oh, I see, there are many different types - not just the type that causes you to loose all pigmentation . . . ;)

[MissAshleyJClark]

@blackguitar999 Without suncream, badly i'd imagine, with no prospects of even a tan after it . . . ;)

[MissAshleyJClark]

@Antwansuperstar88 Don't worry, i'm white and i'm definatly not an Albino . . .  ;)

[MissAshleyJClark]

@nationalwavelength Some white ppl might have problems with their eyesight but most don't. I have blue eyes & theirs never been anything wrong with my eyesight & how can you have brown or red hair and freckles, if you've no pigmentation? I don't know that much about Albonism, & you might think some white ppl look similar, but I think theres a bit more to it than just being white, white ppl don't lack pigmentaton unless they have albonism . . . ;)

[MissAshleyJClark]

@AskariWaryaa Even red heads with their red hair and freckles??? How does that happen with no pigmentation in your skin or hair? ;)

[wondergirlsy]

@crackerkiller187 no, thats not true.

[theonlyzdog]

@crackerkiller187

aaaahh nooo. This is an impairment of melanin. The average white person is not melanin impaired. You noticed how we have some color and we get tans? well some of us get tans.

[theonlyzdog]

@yestheskyISfalling

Sad for the eye and sun thing but I always thought they were awesome looking. Hey at least thats a plus.

[HazelMusik]

@yestheskyISfalling Wow I wish more ppl were like u... ppl call me a freak on YouTube