Seizure overnight, October 3, 2007

This seizure upsets me much more than the seizure I had earlier that same day. In this one, the nurse and the sitter don't think to remove my cpap. They seemed under the delusion it was oxygen. I wouldn't expect the sitter to know, but the nurse should have known what a cpap looks like, at the very least. It most certainly is not oxygen. My blood-oxygen-saturation level dropped to 48% in this seizure. I'm suffocating and no one knows.

Category:

Education

Tags:

• Epilepsy
• activism
• education
• temporal lobe epilepsy
• resection
• veeg
• video monitoring
• neurosurgery

[thamazingrach]

So scary. Sorry you have to deal with this.

[szrgirl]

@thamazingrach Thank you. The surgeries in Dec 2007 fixed the seizures for a very long time. They seem to be returning though. It's scaring the hell out of me. The last two days I had two VERY STRONG auras, but they didn't expand into a Grand Mal. Prior to surgery, my normal seizure wasn't a grand mal, but the "aura" which is a Complex Partial seizure. They would sometimes (but very rarely) expand into a grand mal. It did in this video because we needed them to and removed my medication.

[lhohneklab]

which moment does it exactly start?

[szrgirl]

@lhohneklab My best guess is the seizure (aura) starts about 1:45. In the hospital I usually hold an aura for 10 seconds before I do something. I can see my breathing become deeper at 1:45.

My usual seizures the auras in these videos. Most people do not know when I have a seizure. I have to tell you. I have complex partial epilepsy that generalize sometimes. I'm to alert the staff (press that button, tell the sitter) when I feel a seizure. Sometimes they generalize into this.

[SalemRose88]

So I had my VEEG Jan. 25-29th and they said they were able to gather enough information to diagnose my seizures as being Atypical Juvenile Myoclonic Epilepsy. My Keppra has been increased twice since my Epileptologist appt. so now am taking 3000mg per day and was told to check back with them next week and depending on how my szs are doing will depend on if I have to add another med or not. I hope you are doing better. It feels great to know that I am not in any way crazy......^_^

[szrgirl]

Yay! Sorry it took so long to respond! I've been out of town. It's weird to say "Congratulations", but "Congratulations" on no longer feeling crazy. ;)

I'm on 4,000mg/day of Keppra, 550mg/day Lamictal. They took me off primadone because my current neurologist doesn't like it. I haven't noticed any change in seizures since it was removed. That's good.

[epicchickstix]

wow...the nurse didnt know enough to take it off? thats scary! my husband has been having seizures alot lately no idea whats causing it. hes on 1000 mgs of Keppra twice a day. I starting having seizures the end of July and then in september he had his first...Kind of scary! I hope your doing better though!

[szrgirl]

@DRnikkiHOUSE I hope your medical issues have resolved! Thank you for saying how obvious it is. I couldn't believe it when I saw the video.

[monjanse]

how does the aura feels like?

[bowlchamp411]

i have 2 questions 1. whats that snoring like sound at 3:58? my next question is whats the differnce between non epiliptic sezuries and a epeleptic sezure my older brother had a sezuire when he was a baby and he does not have epelepsy sorry if i am spelling this wrong

[lhohneklab]

@szrgirl ok thank you i wish all the best for you!!

[monjanse]

what is the ayra before a seizure?