'Sarcoidosis'
Original Air Dates: June 6, 7, 8, 2006
Most people have never heard of the mysterious illness Sarcoidosis, but it's believed tens of thousands of Americans have it and many may not even know it because the inflammatory disease is sometimes misdiagnosed. WWNY-TV Reporter Diane Rutherford produced a three-part series to educate the public about the illness shortly after her father died from Sarcoidosis. Since the reports aired, Sarcoidosis sufferers, support groups and physicians from around the nation have been in touch with Diane. Her email is drutherford@wwnytv.net.
It is important that you look at your work history and determine if you had even one day exposure to Beryllium. Sarcoidosis is ruled out and Chronic Beryllium Disease is the diagnosis if you have ANY exposure to Beryllium. Of course Brush Wellman would not want you to know this.
93advocate 2 months ago
I have sacrcoidosis and have found drinking rooibos tea with fresh ginger, cayenne pepper and manuka honey helps enormously. Also I found drinking iron rich water helped as well.
fiveredpears 5 months ago
Just went to my first prenatal visit and found out i have this sarcoidosis, so I am a high risk pregnancy. Im kinda afraid.. I hope my baby is healthy..never heard of this disease before
JodiSherwood 6 months ago
@uktruthseeker2009 I used to always be working on cars...they say there's a link with diesel fuel...I'm in the UK too if that's a help
colinclarke1000 10 months ago
@chj201 I also was diagnosed in 2005 after suffering what I thought to be a chest infection for three months my kidney function dropped to below 16%..I too took prednisolone...thankfully at the moment its kind of under control although my kidneys are at 57% and I get breathless easily.
colinclarke1000 10 months ago
I was diagnosed with Sarcoidosis in 05. Mine were huge skin lesions on my nose, mouth which disfigured my face, arms, legs and back of the neck which were sensitive to the touch. Thank God my breathing was never really affected. After being on Prednisone its presumed to be in remission. My wife and children were a huge part of my recovery always encouraging and willing to look past what was obvious which was a husband and dad with a disfigured face. God bless those who endure this disease.
chj201 1 year ago
Ok i got diagnosed with (neuro) sarcoidosis n 06. they caught mine early.. neuro because it caused me to go blind n my left eye.. prednisone is so not da drug to be on. i alrdy had panic attackz frm goin thru this and that drug INDUCED them even worse. itz listed as a side effect. I then went to methotrexate which got on my liver too much.. nw im on mychophenolate or cellept da original name for it.. bn on it since 07 and doin great. docz say sarcoidosis can go away without reason..just dependz.
40mbooh 1 year ago
outcomes are worse for black women then any other group. For us there is NO REMISSION
jemmyd1 1 year ago
@Motherfella
No I don't.
tyron26musikman 1 year ago
@tyron26musikman Do you honestly believe that soap gave you sarcoidosis?
Motherfella 1 year ago