Nora Going to Bed - Goodentree.com SMA

Nora's bed time as she and Mom talk and joke before she gets her BiPAP mask on to go to sleep. Nora is dying from SMA (Spinal Muscular Atrophy). SMA is the #1 genetic killer of infants and 90% of Type-1 SMA kids don't live to see their 2nd birthday, some never make it to their first. SMA is a horrible disease that weakens all the voluntary muscles of the body. Cough, sitting, standing, swallowing, hands, fingers, toes - everything skeletal is affected. Nora has almost no movement left. Her brain is not affected though she she's like any normal 3-year-old but trapped in a failing body. She is growing weaker and weaker as the disease progresses. There is no treatment for SMA and there is no cure. We just make the most of the time we have left with Nora.

Category:

Entertainment

Tags:

• Nora
• SMA
• Goodentree
• Spinal
• Muscular
• Atrophy
• bed
• time
• sleep
• toddler
• pocoyo
• Pato
• Elly
• terminal
• disease

[motherosix]

Goodnight dear little Nora! (Thank you for sharing videos of Nora!)

[TheBritney881]

Ima be praying for you little,one, along with my nephew(:

[Keilielainy]

Stay strong;)

[THENATIONWIDEFALCLAN]

1st viewer hello how was your guys christmas and how is nora doing