I broke my index finger and I was diagnosed with RSD. I recently had UNNECESSARY changes with my job duties and now my job is extremely stressful. The RSD was controlled until that happened. Now the condition is getting out of control. My pain is intense 24/7 and the doctor had to increase my meds. When increased, the meds make me very ill. I feel so helpless. I have a surgery scheduled for April 2nd. If I don't get this under control, I won't be able to get the surgery. I need help! =(
Our daughter has CRPS/RSD for 2 years. We took her everywhere looking for remission.
I made an appointment with a Hypnotherapist. My wife wheeled our daughter into into his office and after a few hours. She walked out. She is in Zero pain. This is a young woman who was on Morphine, Fentanyl Patches, Symbalta, Neurontin, Methadone as well as many Ketamine infusions.
. The Drs told us that there was basically nothing they could do and she would just have to live with the pain.
Dude- they could have just tried using Cannabis for a medicine instead of all those drugs and just do PT with that. Putting your child in a coma- that is not right- try a plant before putting all those poisons into your body or doing something so risky as to put yourself in a coma!
I've RSD since 2007. I'm in a wheelchair & my feet is dismorphed. I'm now getting a medication pump and there are voices from doctors in hospital to amputate my leg.
It really sucks, having this pain. I hope at a day without pain, but for now this day is far away actually. But I don't want to loose hope.
But the goverment in Holland are full of hypocrite motherfuckers. Only thinking about how they can get as much money, without thinking to other people.
We know the coma treatment works for about half of us... There are VERY risky meds on the market that can cause other neuro problems that are permanent that the FDA condones & approves, why not the Ketamine Treatment with follow-up ADEQUATE PT so we CAN go back to work? RSD/CRPS is a world-wide problem.
WHY is PT regulated by a $ sign by Medicare/Insurance, & yet tons of SSRIs/SNRIs are used that can cause lifetimes of other neuro problems & this Tx is is beyond me! The FDA needs to approve!
@latinochef - Does this /watch?v=PW_vstm0bS8&feature=related look like "i just need attention" to you. I'm not religious, but there must be a place like hell for people like you.
There will always be people faking something for attention or to frame someone. You are a fake too. At least I don't think that you really are a doctor... maybe a doctor in youtube-trolling.
Go visit fun videos on youtube, but stay away from people who are fighting for a better life for themself or their family.
I've had this condition for about 2-4 years i know how she feels!!
TheNerdgirl55 2 hours ago
I broke my index finger and I was diagnosed with RSD. I recently had UNNECESSARY changes with my job duties and now my job is extremely stressful. The RSD was controlled until that happened. Now the condition is getting out of control. My pain is intense 24/7 and the doctor had to increase my meds. When increased, the meds make me very ill. I feel so helpless. I have a surgery scheduled for April 2nd. If I don't get this under control, I won't be able to get the surgery. I need help! =(
deeks1970 1 week ago
@joellefkowitz Sounds just like what is happening to me, maybe i should give that i try!
spreadthewordRSD 1 week ago
Our daughter has CRPS/RSD for 2 years. We took her everywhere looking for remission.
I made an appointment with a Hypnotherapist. My wife wheeled our daughter into into his office and after a few hours. She walked out. She is in Zero pain. This is a young woman who was on Morphine, Fentanyl Patches, Symbalta, Neurontin, Methadone as well as many Ketamine infusions.
. The Drs told us that there was basically nothing they could do and she would just have to live with the pain.
joellefkowitz 3 weeks ago
i have RSD and its a ten pain i know how it feels
lionkinglover86 1 month ago
Dude- they could have just tried using Cannabis for a medicine instead of all those drugs and just do PT with that. Putting your child in a coma- that is not right- try a plant before putting all those poisons into your body or doing something so risky as to put yourself in a coma!
PeaceMouse17 3 months ago
I've RSD since 2007. I'm in a wheelchair & my feet is dismorphed. I'm now getting a medication pump and there are voices from doctors in hospital to amputate my leg.
It really sucks, having this pain. I hope at a day without pain, but for now this day is far away actually. But I don't want to loose hope.
But the goverment in Holland are full of hypocrite motherfuckers. Only thinking about how they can get as much money, without thinking to other people.
2009vampiregirl 4 months ago
We know the coma treatment works for about half of us... There are VERY risky meds on the market that can cause other neuro problems that are permanent that the FDA condones & approves, why not the Ketamine Treatment with follow-up ADEQUATE PT so we CAN go back to work? RSD/CRPS is a world-wide problem.
WHY is PT regulated by a $ sign by Medicare/Insurance, & yet tons of SSRIs/SNRIs are used that can cause lifetimes of other neuro problems & this Tx is is beyond me! The FDA needs to approve!
dreamsurfer63 8 months ago
@latinochef - Does this /watch?v=PW_vstm0bS8&feature=related look like "i just need attention" to you. I'm not religious, but there must be a place like hell for people like you.
There will always be people faking something for attention or to frame someone. You are a fake too. At least I don't think that you really are a doctor... maybe a doctor in youtube-trolling.
Go visit fun videos on youtube, but stay away from people who are fighting for a better life for themself or their family.
Sephiroth767 9 months ago
please youtube "water cure nurse". seems for real.
capricious71 9 months ago